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父母有可能承受死产之痛吗?初步经历、认知与应对策略:2021年至2023年在瑞典进行的个人深度访谈

Is it possible for parents to endure a stillbirth? Initial experiences, perceptions and strategies: individual in-depth interviews in Sweden 2021-2023.

作者信息

Höglund Berit, Hildingsson Ingegerd

机构信息

Department of Women's and Children's Health, Uppsala University, Uppsala, 751 85, Sweden.

Department of Nursing, Mid Sweden University, Sundsvall, Sweden.

出版信息

BMC Pregnancy Childbirth. 2025 Jan 3;25(1):4. doi: 10.1186/s12884-024-07055-0.

Abstract

BACKGROUND

Stillbirth occurs at a rate of 3.0 per thousand in Sweden. However, few studies have focused on the initial experiences of parents facing a stillbirth. The aim of this qualitative study is to deepen and broadly explore parents' initial experiences, perceptions, internal processes and strategies from the moment of suspicion or awareness of stillbirth until one month after the event.

METHODS

Ten individual in-depth interviews were conducted between 2021 and 2023, and data were evaluated using thematic network analysis.

RESULTS

Two key themes emerged: 'Following the journey - from suspicion to acceptance' and 'Support, structured activities and processes after stillbirth'. These themes captured the significant consequences of a sudden, unexpected and devastating end to pregnancy. The suspicion and eventual diagnosis of stillbirth were initially associated with sudden discomfort, fear, overwhelming grief, and intense pain. Nevertheless, a vaginal birth was regarded as the optimal mode of delivery for both physical and emotional wellbeing. Caring for the stillborn baby through physical proximity for an extended period of time helped parents comprehend and cope with their grief, while also affirming their sense of parenthood.

CONCLUSIONS

This study sheds light on the profound and devastating impact of stillbirth on parents who are confronted with the loss of their long-awaited and cherished baby. The intense grief and pain experienced by parents during the first month after stillbirth were described as an ongoing heavy burden, persisting day and night, and reflected in poor/very poor mental health. Despite the immense challenges faced by parents, the study highlights the importance of developing individual coping strategies to deal with this tragic and irreversible life-changing event.

摘要

背景

瑞典死产发生率为千分之3.0。然而,很少有研究关注死产患儿父母的最初经历。这项定性研究的目的是深入并广泛探讨父母从怀疑或知晓死产那一刻起直至事件发生后一个月内的最初经历、认知、内心过程及应对策略。

方法

2021年至2023年间进行了10次个人深度访谈,并运用主题网络分析法对数据进行评估。

结果

出现了两个关键主题:“经历这一过程——从怀疑到接受”以及“死产后的支持、结构化活动及过程”。这些主题体现了妊娠突然、意外且毁灭性结束所带来的重大影响。死产的怀疑及最终诊断最初与突然的不适、恐惧、极度悲伤和剧痛相关。然而,经阴道分娩被视为对身心健康而言的最佳分娩方式。长时间近距离照料死产婴儿有助于父母理解并应对悲痛,同时也强化了他们的父母身份认同感。

结论

本研究揭示了死产对那些失去了期待已久且珍视的婴儿的父母所产生的深刻且毁灭性的影响。父母在死产后第一个月所经历的强烈悲痛和痛苦被描述为持续不断的沉重负担,日夜萦绕,且反映在较差/极差的心理健康状况上。尽管父母面临着巨大挑战,但该研究强调了制定个人应对策略以应对这一悲惨且不可逆转的改变人生事件的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/362a/11699641/43643e9c9a3a/12884_2024_7055_Fig1_HTML.jpg

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