Safarikova Jana, Young Eliane, Mastroyannopoulou Kiki, Fisher Paul
Department of Clinical Psychology and Psychological Therapies, University of East Anglia, Norwich Medical School, Norwich, UK.
Psychological Medicine for Children, Young People and Families, Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK.
PEC Innov. 2024 Dec 6;6:100362. doi: 10.1016/j.pecinn.2024.100362. eCollection 2025 Jun.
This study explored parents' experiences of the transition of responsibility to their child for healthcare decisions relating to their cleft lip and/or palate (CL/P).
Online semi-structured interviews were conducted with 11 participants (six females and five males, aged 41 to 60 years). They were parents of young people who had decided whether to undergo orthognathic surgery. The data were transcribed and analysed using interpretative phenomenological analysis (IPA).
A responsibility shift from participants to their children was identified in 2 main themes 'A natural process ' and 'It has to be their decision'.
The process of shifting responsibility for decision-making to the child comprised a spectrum of experiences from a relief to a shock and upset. Participants went through sometimes difficult negotiating of their ongoing involvement while supporting their child.
The importance of addressing psychological aspects of the family system as well as the young person is highlighted here. Addressing the familial complexities of the transition may contribute to the success of the whole process. Clinicians need careful consideration of the potential emotional impact on parents which is not always shared.
本研究探讨了父母将与唇腭裂（CL/P）相关的医疗保健决策责任过渡给孩子的经历。
对11名参与者（6名女性和5名男性，年龄在41至60岁之间）进行了在线半结构化访谈。他们是已决定是否接受正颌手术的年轻人的父母。使用解释性现象学分析（IPA）对数据进行转录和分析。
在“自然过程”和“必须由他们做决定”这两个主要主题中，确定了责任从参与者向其子女的转移。
将决策责任转移给孩子的过程包含了从解脱到震惊和不安等一系列经历。参与者在支持孩子的同时，有时要艰难地协商自己持续的参与程度。
这里强调了关注家庭系统以及年轻人心理层面的重要性。解决过渡过程中的家庭复杂性问题可能有助于整个过程的成功。临床医生需要仔细考虑对父母潜在的情感影响，而这种影响并不总是相同的。
