Heath Gemma, Farre Albert, Shaw Karen
Department of Psychology, School of Life and Health Sciences, Aston University, Birmingham, B4 7ET, UK.
Research and Development, Birmingham Children's Hospital, Birmingham, UK; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
Patient Educ Couns. 2017 Jan;100(1):76-92. doi: 10.1016/j.pec.2016.08.011. Epub 2016 Aug 16.
To understand how parents view and experience their role as their child with a long-term physical health condition transitions to adulthood and adult healthcare services.
Five databases were systematically searched for qualitative articles examining parents' views and experiences of their child's healthcare transition. Papers were quality assessed and thematically synthesised.
Thirty-two papers from six countries, spanning a 17-year period were included. Long-term conditions were diverse. Findings indicated that parents view their child's progression toward self-care as an incremental process which they seek to facilitate through up-skilling them in self-management practices. Parental perceptions of their child's readiness, wellness, competence and long-term condition impacted on the child' progression to healthcare autonomy. A lack of transitional healthcare and differences between paediatric and adult services served as barriers to effective transition. Parents were required to adjust their role, responsibilities and behaviour to support their child's growing independence.
Parents can be key facilitators of their child's healthcare transition, supporting them to become experts in their own condition and care. To do so, they require clarification on their role and support from service providers.
Interventions are needed which address the transitional care needs of parents as well as young people.
了解在患有长期身体健康问题的孩子向成年期过渡并进入成人医疗服务体系时，父母如何看待并体验自己所扮演的角色。
系统检索五个数据库，查找关于父母对孩子医疗过渡的看法和体验的定性文章。对论文进行质量评估并进行主题综合分析。
纳入了来自六个国家、跨越17年的32篇论文。长期病症多种多样。研究结果表明，父母将孩子向自我护理的进展视为一个渐进的过程，他们试图通过提高孩子自我管理实践的技能来促进这一过程。父母对孩子的准备情况、健康状况、能力和长期病症的认知影响着孩子向医疗自主的进展。缺乏过渡性医疗服务以及儿科和成人服务之间的差异成为有效过渡的障碍。父母需要调整自己的角色、责任和行为，以支持孩子日益增长的独立性。
父母可以成为孩子医疗过渡的关键促进者，支持他们成为自身病情和护理方面的专家。要做到这一点，他们需要明确自己的角色并获得服务提供者的支持。
需要开展干预措施，以满足父母以及年轻人的过渡性护理需求。
