Department of Clinical Medicine - Randers Regional Hospital, Aarhus University, Østervangsvej 70,2, 8930 Randers NØ, Denmark; Faculty of Nursing and Health Sciences, Nord University, Universitetsalléen 11, 8049 Bodø, Norway; Danish Centre of Clinical Guidelines and Danish Centre of Systematic Reviews, A Joanna Briggs Institute Centre of Excellence, Aalborg University, Aalborg, Denmark.
Department of Public Health, Aarhus University, Bartholins Alle 2, 8000 Aarhus C, Denmark; Faculty of Health Sciences and Nursing, University of Faroe Islands, Torshavn, Faroe Islands.
Int J Nurs Stud. 2021 Mar;115:103851. doi: 10.1016/j.ijnurstu.2020.103851. Epub 2020 Dec 9.
Family members of young people (13-24 years) with long-term conditions tend to experience multiple challenges when their children transfer from paediatric to adult care, as do the patients themselves.
To identify, interpret and theoretically conceptualise the meaning of parents' experiences of the transfer from paediatric to adult care of their young people with long-term conditions.
A qualitative research synthesis.
We obtained articles from Medline, CINAHL, PsycINFO, EMBASE, Scopus, and Web of Science. Unpublished theses and dissertations were searched for using Google Scholar, Mednar, and ProQuest Dissertations and Theses.
Based on a previously published protocol, we followed the guidelines from the Joanna Briggs Institute. Sandelowski and Barroso's qualitative research synthesis approach guided the metasynthesis. Articles published between 1999 and March 2019 were systematically searched for.
Twenty-three reports from seven Western countries representing 454 parents including significant others such as aunts and grandparents of 462 young people with various diagnoses contributed to the review. 'Being cross-pressured' was the metasynthesis found to reflect parents' experiences of the transfer from paediatric to adult care of their young people with long-term conditions. The metasynthesis comprised four themes: 'Fluctuating between parental roles', 'Navigating contrasting healthcare contexts', 'Making decisions in the face of inner conflict', and 'Trusting their child's self-management ability'.
Our metasynthesis finding of parents' experiences of being cross-pressured provides a new way of thinking about the study phenomena which is supported by transitions theory holding that multiple transitions can take place simultaneously involving myriads of concurrent and conflicting demands. The cross pressure may overwhelm parents. The clinical implications are to recognise parents' experiences and distress in healthcare planning to promote safe and predicable transfers of their young people. Provision of healthcare to parents during transfer needs to be tailored to a collaborative decision-making process between parents, their young people, and involved practitioners across paediatric and adult healthcare services. Tweetable abstract: Parents experienced being cross-pressured when their young people with long-term conditions were transferred from paediatric to adult care.
年轻人（13-24 岁）的家庭成员在其子女从儿科过渡到成人护理时，往往会面临多重挑战，患者自身也是如此。
确定、解释和从理论上概念化父母在其患有长期疾病的年轻人从儿科过渡到成人护理时的体验的意义。
定性研究综合。
我们从 Medline、CINAHL、PsycINFO、EMBASE、Scopus 和 Web of Science 中获取文章。使用 Google Scholar、Mednar 和 ProQuest Dissertations and Theses 搜索未发表的论文和学位论文。
根据先前发表的方案，我们遵循了 Joanna Briggs 研究所的指南。Sandelowski 和 Barroso 的定性研究综合方法指导了元综合。系统地搜索了 1999 年至 2019 年 3 月期间发表的文章。
来自七个西方国家的 23 份报告代表了 454 名父母，包括 462 名患有各种诊断的年轻人的亲戚，如阿姨和祖父母，为综述做出了贡献。“受到多方压力”被发现反映了父母在其患有长期疾病的年轻人从儿科过渡到成人护理时的体验。元综合包括四个主题：“在父母角色之间波动”、“在不同的医疗保健环境中导航”、“在内心冲突面前做出决策”和“信任孩子的自我管理能力”。
我们对父母受到多方压力的体验的元综合发现为研究现象提供了一种新的思考方式，这一发现得到了同时发生的多个过渡的转变理论的支持，涉及无数并发和冲突的需求。这种交叉压力可能会让父母不堪重负。临床意义在于在医疗保健规划中认识到父母的经历和痛苦，以促进其年轻人的安全和可预测的过渡。在转移期间为父母提供的医疗保健需要根据父母、他们的年轻人以及儿科和成人医疗保健服务中涉及的从业者之间的协作决策过程进行调整。可推文摘要：当年轻人患有长期疾病从儿科过渡到成人护理时，父母会感到受到多方压力。
