Liu Jie, Wang Yu-Xiao, Li Jing, Wu Dahong, Zeng Guang-Xian, Cheng Jing, Wang Jia-Yi, Zheng Jian-Zhong, He Lu
Department of Social Medicine, School of Public Health, Shanxi Medical University, Taiyuan, Shanxi, 030001, China.
Community Health and Health Development Research Centre, Taiyuan, Shanxi, 030001, China.
BMC Public Health. 2025 Jan 6;25(1):39. doi: 10.1186/s12889-024-21240-y.
Hearing loss significantly affects children's lives; however, the health-related quality of life (QoL) of children with this disability is not well measured. We sought to develop a reliable and valid measure of health-related QoL in children with hearing loss.
We constructed a conceptual framework to assess the QoL of children with hearing loss based on the Pediatric Quality of Life Inventory™ Version 4.0 child quality of life scale and World Health Organization Quality of Life Brief Version disability general version. The item pool was generated through two rounds of the Delphi method and subsequent group discussions. Subsequently, both a pre-survey and a formal survey were administered across eight hospitals and nine special education schools located in Shanxi and Hebei Province, China. The process of selecting items was grounded in classical test theory and item response theory. Ultimately, we assessed the reliability and validity of the QoL Scale designed for children with hearing loss in China.x` RESULTS: The final health-related QoL scale for children with hearing loss (HRQOL-CHL) included 37 items, 6 domains, and 8 subdomains. Reliability assessment encompassed Cronbach's alpha coefficient, split-half reliability, and retest reliability measures. Specifically, for the entire scale, Cronbach's alpha yielded a coefficient of 0.755, binary reliability of 0.796, and retest reliability of 0. 931. The validity findings indicated that the scale performed as anticipated. Both exploratory factor analysis and confirmatory factor analysis demonstrated that this multidimensional scale was well-suited for assessing children with hearing loss, demonstrating a superior fit.
The HRQOL-CHL exhibits positive reliability, validity, and feasibility, which makes it an efficient QoL assessment tool for children with hearing loss in China.
听力损失对儿童的生活有重大影响；然而，这种残疾儿童的健康相关生活质量（QoL）并未得到很好的衡量。我们试图开发一种可靠且有效的方法来衡量听力损失儿童的健康相关生活质量。
我们基于儿童生活质量量表第4.0版和世界卫生组织生活质量简表残疾通用版构建了一个概念框架，以评估听力损失儿童的生活质量。通过两轮德尔菲法和随后的小组讨论生成了项目池。随后，在中国山西省和河北省的八家医院和九所特殊教育学校进行了预调查和正式调查。项目选择过程基于经典测试理论和项目反应理论。最终，我们评估了为中国听力损失儿童设计的生活质量量表的信度和效度。
最终的听力损失儿童健康相关生活质量量表（HRQOL-CHL）包括37个项目、6个领域和8个子领域。信度评估包括克朗巴哈α系数、分半信度和重测信度测量。具体而言，对于整个量表，克朗巴哈α系数为0.755，二分信度为0.796，重测信度为0.931。效度研究结果表明该量表表现符合预期。探索性因素分析和验证性因素分析均表明，这个多维量表非常适合评估听力损失儿童，拟合度良好。
HRQOL-CHL具有良好的信度、效度和可行性，这使其成为中国听力损失儿童生活质量评估的有效工具。
