Chastain Ashley M, Shang Jingjing, Murali Komal P, King Lori, Ogunlusi Charity, Zhao Suning, Kang Jung A, Zhao Yihong, Dualeh Khadra, McDonald Margaret V
Home Healthc Now. 2025;43(1):21-31. doi: 10.1097/NHH.0000000000001316. Epub 2025 Jan 7.
Palliative care improves the quality of life for seriously ill patients, but misconceptions and knowledge gaps hinder its implementation in home healthcare (HHC). This study developed and pilot-tested HHC-specific questionnaires to measure palliative care knowledge, attitudes, and confidence (PC-KAC) among clinicians, patients, and caregivers. Using literature reviews, expert input, and cognitive interviews, the questionnaires were refined to ensure clarity, practical relevance, and content validity. Pilot testing revealed widespread confusion about palliative care, with patients and caregivers often conflating it with hospice care and holding misconceptions about opioid use for pain and symptom management. While clinicians demonstrated adequate knowledge, gaps in pain management and confidence in handling emergencies were evident. These findings highlight the need for targeted education and training to integrate palliative care effectively into HHC, improving patient outcomes and supporting interdisciplinary collaboration.
姑息治疗可改善重症患者的生活质量，但误解和知识差距阻碍了其在家庭医疗保健（HHC）中的实施。本研究开发并进行了针对HHC的问卷调查，以衡量临床医生、患者和护理人员的姑息治疗知识、态度和信心（PC-KAC）。通过文献综述、专家意见和认知访谈，对问卷进行了完善，以确保其清晰度、实际相关性和内容效度。试点测试发现，人们对姑息治疗普遍存在困惑，患者和护理人员常常将其与临终关怀相混淆，并且对使用阿片类药物进行疼痛和症状管理存在误解。虽然临床医生表现出了足够的知识，但在疼痛管理方面存在差距，并且在处理紧急情况时信心明显不足。这些发现凸显了开展有针对性的教育和培训的必要性，以便将姑息治疗有效地整合到家庭医疗保健中，改善患者预后并支持跨学科协作。
