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成人血液透析患者交通成本的社会经济影响:一项混合方法研究。

The Socioeconomic Impact of Transport Costs for Adult Patients Requiring Haemodialysis: A Mixed Methods Study.

作者信息

Gröble Sabrina, Bilger Jana, Britt Chantal, Kaspar Heidi, Herzig Sabine, Schmitt Kai-Uwe

机构信息

Applied Research & Development in Nursing, Department of Health Professions, Bern University of Applied Sciences, 3008 Bern, Switzerland.

Institute of Health Economics and Health Policy, Department of Health Professions, Bern University of Applied Sciences, 3008 Bern, Switzerland.

出版信息

Healthcare (Basel). 2024 Dec 11;12(24):2513. doi: 10.3390/healthcare12242513.

Abstract

BACKGROUND/OBJECTIVES: Patients requiring haemodialysis often perceive the cost of their travels to the dialysis centres as a significant burden. The study aimed to collect a first Swiss national data set on transport costs and assess their impact on patients and their relatives.

METHODS

In addition to interviews with patients, a quantitative survey was developed and distributed online using a voluntary sampling strategy. Data were analysed by means of descriptive statistics. A Sounding Board of patients, relatives, and healthcare professionals accompanied all steps of the project.

RESULTS

A total of 6 dialysis patients were interviewed; 437 respondents of the national survey met the inclusion criteria. Patients travel a median distance of 7.5 km to their dialysis centres. For 78% of them, the journey takes up to 30 min, and nearly half use their private car as their main mode of transport. The median annual transport costs are CHF 2925 (mean = CHF 5041). Approximately half of the patients perceive transport costs as a burden or limitation, yet only about 30% receive financial support, for which there is no standard process. Patients requiring financial support reported difficulties navigating the system.

CONCLUSIONS

This study highlighted that many dialysis patients are burdened by transport costs and receive limited financial support and counselling services. Implementation of a standardised process for financial support should be explored.

摘要

背景/目的:需要进行血液透析的患者常常将前往透析中心的交通费用视为一项沉重负担。本研究旨在收集瑞士首个关于交通费用的全国数据集,并评估其对患者及其亲属的影响。

方法

除了对患者进行访谈外,还制定了一项定量调查,并采用自愿抽样策略在网上分发。通过描述性统计方法对数据进行分析。患者、亲属和医疗保健专业人员组成的咨询委员会参与了该项目的所有步骤。

结果

共访谈了6名透析患者;全国调查中有437名受访者符合纳入标准。患者前往透析中心的中位距离为7.5公里。其中78%的患者行程耗时长达30分钟,近一半患者以私家车作为主要交通方式。年交通费用中位数为2925瑞士法郎(平均为5041瑞士法郎)。约一半的患者认为交通费用是一种负担或限制,但只有约30%的患者获得了经济支持,且没有标准的申请流程。需要经济支持的患者表示在申请过程中遇到困难。

结论

本研究强调,许多透析患者承受着交通费用的负担,获得的经济支持和咨询服务有限。应探索实施标准化的经济支持申请流程。

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