Kitta Anna, Winsauer Sarah, Marx Sal, Kum Lea, Adamidis Feroniki, Ecker Franziska, Stöger Jessica, Masel Eva Katharina
Division of Palliative Medicine, Department of Medicine I, Medical University of Vienna, Spitalgasse 23, 1090, Vienna, Austria.
Department of Psychoanalysis and Psychotherapy, Medical University of Vienna, Spitalgasse 23, 1090, Vienna, Austria.
Wien Klin Wochenschr. 2025 Jan 7. doi: 10.1007/s00508-024-02480-9.
The aim of this study was to create a patient-centered comic on palliative care with and for patients admitted to a palliative care unit and to examine their experiences of graphic educational material.
This study employed a qualitative methodology using semi-structured interviews with advanced cancer patients admitted to the palliative care unit of the Medical University of Vienna. The data were analyzed using thematic analysis with the assistance of the MAXQDA software.
In the first phase of the comic creation 6 interviews were conducted and 15 additional interviews in the second phase, all of which examined patients' reactions to the comic. The findings revealed three themes: 1) patients' experiences with and understanding of graphics about palliative care, 2) patients' perceptions of the possibilities for use of the comic and 3) how the visual material facilitated access to the patients' shared imagination and interpretations. The medium generated curiosity, participation, and positive reactions. Patients were inclined to be involved in patient-centered educational material that enabled an entry into conversations and connection, giving access to feelings and associations of patients.
The results of the present study offer insights into mostly positive reactions of patients when presented with a comic about palliative care. The study showed how illustrated educational information led to deepened conversation among the interviewer and the patients, offering insights into their experiences and imagination.
本研究旨在为入住姑息治疗病房的患者创作一部以患者为中心的姑息治疗漫画，并调查他们对这种图文并茂的教育材料的体验。
本研究采用定性研究方法，对维也纳医科大学姑息治疗病房收治的晚期癌症患者进行半结构化访谈。借助MAXQDA软件，采用主题分析法对数据进行分析。
在漫画创作的第一阶段进行了6次访谈，第二阶段又进行了15次访谈，所有访谈均调查了患者对漫画的反应。研究结果揭示了三个主题：1）患者对姑息治疗相关图形的体验和理解；2）患者对漫画使用可能性的认知；3）视觉材料如何促进进入患者共同的想象和解读。这种媒介引发了好奇心、参与度和积极反应。患者倾向于参与以患者为中心的教育材料，这种材料能够开启对话并建立联系，让人们了解患者的感受和联想。
本研究结果表明，当向患者展示一部关于姑息治疗的漫画时，患者大多会产生积极反应。该研究展示了图文并茂的教育信息如何促使访谈者与患者之间展开更深入的对话，从而深入了解他们的经历和想象。
