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并非写在脸上:在疼痛门诊会诊与访谈中将慢性疼痛建构为无形

It's Not Written All Over My Face: Constructing Chronic Pain as Invisible in Pain Clinic Consultations and Interviews.

作者信息

Declercq Jana

机构信息

Department of Linguistics, University of Antwerp, Antwerp, Belgium.

出版信息

Clin J Pain. 2025 Mar 1;41(3):e1273. doi: 10.1097/AJP.0000000000001273.

DOI:10.1097/AJP.0000000000001273
PMID:39782005
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11801457/
Abstract

OBJECTIVES

Historically in medicine and beyond, the understanding of and treatment of pain is based on finding tissue injury. The fact that for chronic pain, there often is no (longer) any traceable tissue injury, in combination with the fact that pain essentially is a private experience, poses a challenge for clinical communication. This paper therefore examines how pain is linguistically and interactionally constructed as invisible.

MATERIALS AND METHODS

The qualitative approach of interactional sociolinguistic analysis is used to analyze 37 consultations and 11 semistructured interviews with patients with chronic pain, collected at a Belgian pain clinic. This fine-grained approach to studying communication provides an in-depth empirical understanding of the phenomenon under scrutiny.

RESULTS

The data show that pain is constructed as invisible on several levels: (1) on the biomechanical and clinical level, in terms of its lack of visible or traceable tissue injury, (2) on the level of interaction, as pain needs to be made apparent to other people through pain displays, and (3) on the social level, as chronic pain often is not visible or apparent in society more broadly.

CONCLUSION

The discussion explores how on these 3 levels, notions of the abnormal or deviant body come into play, in which patients and health professionals complexly construct pain both as not normal (i.e., not a neutral or desirable state of being), whereas, at the same time, the lack of traceable tissue injury is constructed as medically normal for chronic pain. This also relates to how patients and health care providers often orient to the stigma around chronic pain.

摘要

目的

在医学及其他领域的历史上,对疼痛的理解和治疗基于发现组织损伤。对于慢性疼痛而言,通常不再存在任何可追溯的组织损伤这一事实,加之疼痛本质上是一种个人体验,给临床交流带来了挑战。因此,本文探讨疼痛如何在语言和互动中被建构为无形的。

材料与方法

采用互动社会语言学分析的定性方法,对在比利时一家疼痛诊所收集的37次会诊以及11次对慢性疼痛患者的半结构化访谈进行分析。这种对交流进行细致研究的方法能对所研究的现象提供深入的实证理解。

结果

数据表明,疼痛在几个层面上被建构为无形的:(1)在生物力学和临床层面,因其缺乏可见或可追溯的组织损伤;(2)在互动层面,因为疼痛需要通过疼痛表现向他人显现出来;(3)在社会层面,因为慢性疼痛在更广泛的社会中通常不可见或不明显。

结论

讨论探讨了在这三个层面上,异常或偏离正常的身体观念是如何发挥作用的,患者和健康专业人员如何复杂地将疼痛建构为不正常的(即不是一种中性或理想的存在状态),而与此同时,缺乏可追溯的组织损伤对于慢性疼痛而言在医学上却被建构为正常的。这也涉及到患者和医疗服务提供者如何常常面对围绕慢性疼痛的污名化问题。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/b2eaa86d49b1/ajp-41-e1273-g008.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/e0af348abbb6/ajp-41-e1273-g001.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/9f7acef31ba0/ajp-41-e1273-g005.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/b2eaa86d49b1/ajp-41-e1273-g008.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/e0af348abbb6/ajp-41-e1273-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/7657bb9d5abe/ajp-41-e1273-g002.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/9f7acef31ba0/ajp-41-e1273-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/e006219025bf/ajp-41-e1273-g006.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/f1aae668a4a0/ajp-41-e1273-g007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0153/11801457/b2eaa86d49b1/ajp-41-e1273-g008.jpg

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本文引用的文献

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Talking about chronic pain in family settings: a glimpse of older persons' everyday realities.在家庭环境中谈论慢性疼痛:老年人日常生活一瞥。
BMC Geriatr. 2022 Apr 23;22(1):358. doi: 10.1186/s12877-022-03058-8.
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How General Practitioners Raise Psychosocial Concerns as a Potential Cause of Medically Unexplained Symptoms: A Conversation Analysis.
全科医生如何提出心理社会问题作为医学无法解释症状的潜在原因:会话分析。
Health Commun. 2022 May;37(6):696-707. doi: 10.1080/10410236.2020.1864888. Epub 2021 Jan 13.
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Painful metaphors: enactivism and art in qualitative research.痛苦的隐喻:质性研究中的具身认知论与艺术
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Clinician and patient beliefs about diagnostic imaging for low back pain: a systematic qualitative evidence synthesis.临床医生和患者对腰痛诊断性影像学检查的看法:一项系统性定性证据综合分析
BMJ Open. 2020 Aug 23;10(8):e037820. doi: 10.1136/bmjopen-2020-037820.
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The Multimodal Assessment Model of Pain: A Novel Framework for Further Integrating the Subjective Pain Experience Within Research and Practice.多模态疼痛评估模型:进一步将主观疼痛体验整合到研究和实践中的新框架。
Clin J Pain. 2019 Mar;35(3):212-221. doi: 10.1097/AJP.0000000000000670.
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Defining and Measuring Diagnostic Uncertainty in Medicine: A Systematic Review.医学中诊断不确定性的定义和测量:系统评价。
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