Zhao Zhixin, Wang Xiaoxuan, Zhang Chunhui, Wang Shanshan, Zhang Zhen-Xiang, Lin Bei-Lei, Mei Yong-Xia, Jiang Hu
School of Nursing and Health, Zhengzhou University, Zhengzhou, China.
School of Nursing, Inner Mongolia Medical University, Hohhot, China.
BMJ Open. 2024 Dec 20;14(12):e091273. doi: 10.1136/bmjopen-2024-091273.
This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.
A descriptive phenomenological qualitative study was performed. Colaizzi's seven-step method was used to analyse the data.
Two hospitals in Zhengzhou and Luoyang City, Henan Province, China.
19 patients who had a stroke were recruited and interviewed face-to-face between October 2023 and February 2024.
The findings revealed two categories: positive perceptions and stage experiences. Three themes of positive perceptions were extracted: 'accept the facts of illness while maintaining inner integrity' with three subthemes (disease cognition, firm faith and positive attitude); 'clarify one's own needs and strive for them' with four subthemes (self-care knowledge, effective communication, independent decision-making and power from relation); 'enhancing subjective initiative and maintaining healthy behaviours' with three subthemes (active participant in disease management, increased treatment compliance and increased initiative in rehabilitation exercises). Three stage experiences themes were motivation, response and stabilisation stage.
In this study, patients who had a stroke showed more positive perceptions of self-advocacy. Self-advocacy is a dynamic and progressive process of accepting their disease and actively participating in disease treatment. In addition, patients' health behaviours are improved and maintained when they engage in self-advocacy.
本研究探讨了中国中风患者自我主张的认知和经历。
进行了一项描述性现象学定性研究。采用科莱齐的七步法分析数据。
中国河南省郑州市和洛阳市的两家医院。
招募了19名中风患者，并于2023年10月至2024年2月期间进行了面对面访谈。
研究结果揭示了两个类别：积极认知和阶段经历。提取了积极认知的三个主题：“接受疾病事实并保持内心完整”，有三个子主题（疾病认知、坚定信念和积极态度）；“明确自身需求并为之努力”，有四个子主题（自我护理知识、有效沟通、独立决策和关系带来的力量）；“增强主观能动性并保持健康行为”，有三个子主题（积极参与疾病管理、提高治疗依从性和增加康复锻炼主动性）。三个阶段经历主题是动机、反应和稳定阶段。
在本研究中，中风患者对自我主张表现出更多积极认知。自我主张是一个接受疾病并积极参与疾病治疗的动态渐进过程。此外，患者在进行自我主张时，其健康行为会得到改善和维持。
