Baranowski Maria, Cameranesi Margherita, Mignone Javier, McCombe Lindsay, Kostal Kayla, Heschuk Jenna, Shooshtari Shahin
Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
St.Amant, Winnipeg, Canada.
J Intellect Dev Disabil. 2024 Mar;49(1):57-66. doi: 10.3109/13668250.2023.2193135. Epub 2023 Apr 19.
Deinstitutionalisation refers to the transition of individuals with intellectual and developmental disabilities from large institutions to smaller homes in the community. The purpose of this study was to explore how family members of persons with intellectual and developmental disabilities perceived their loved ones' community transition process.
Eight family members of persons with severe or profound intellectual and developmental disabilities formerly residing at the complex care facility of St.Amant participated in semi-structured interviews. Interview transcripts were analysed thematically using an iterative inductive process and constant comparative method.
Three main themes emerged from the family members' accounts of their loved ones' community transitions process: 1) families' initial reactions, 2) strengths, and 3) challenges.
Initial reactions of family members to learning about the community transitions process were varied. Family members' perspectives inform deinstitutionalisation efforts by highlighting facilitators such as adequate involvement, and barriers such as, unanticipated delays, to the community transitions process.
去机构化是指智力和发育障碍者从大型机构向社区中的小型家庭过渡。本研究的目的是探讨智力和发育障碍者的家庭成员如何看待其亲人的社区过渡过程。
八名曾居住在圣阿曼特综合护理机构的重度或极重度智力和发育障碍者的家庭成员参与了半结构化访谈。使用迭代归纳法和持续比较法对访谈记录进行了主题分析。
家庭成员对其亲人社区过渡过程的描述中出现了三个主要主题：1）家庭的最初反应，2）优势，3）挑战。
家庭成员对了解社区过渡过程的最初反应各不相同。家庭成员的观点通过强调社区过渡过程中的促进因素（如充分参与）和障碍（如意外延迟），为去机构化努力提供了参考。
