Cribben Hannah, Batchelor Rachel, Macdonald Pamela, Treasure Janet, Cini Erica, Nicholls Dasha, Kan Carol
Centre for Research in Eating and Weight Disorders, Institute of Psychiatry, Psychology & Neuroscience, King's College London, UK.
Oxford Institute of Clinical Psychology Training and Research, University of Oxford, UK.
BJPsych Open. 2025 Jan 17;11(1):e17. doi: 10.1192/bjo.2024.812.
Research suggests that those caring for a loved one with an eating disorder in the UK report unmet needs and highlight areas for improvement. More research is needed to understand these experiences on a wider, national scale.
To disseminate a national survey for adults who had experience caring for a loved one with an eating disorder in the UK, informed by the findings of a smaller scale, qualitative study with parents, siblings and partners in the UK.
A cross-sectional web-based survey was disseminated to adults who had experience caring for a loved one with an eating disorder in the UK.
A total of 360 participants completed the survey. Participants described experiences of care received in both children and young people's, and adult services. Those receiving care from children and young people's services generally reported more timely care, greater involvement in care and more confidence managing their loved one's symptoms post-discharge. In both settings, participants identified a number of areas for improvement, including more timely access to care, improved transition processes and discharge planning, and increased involvement in their loved one's care.
This survey captures the experiences of individuals caring for a loved one with an eating disorder in the UK. There are identified discrepancies between experiences of care in children and young people services compared with adult services. Clinical implications and recommendations for improvement are discussed, including improved transition and discharge processes, increased involvement of and/or support for carers themselves, and more timely access to support services for the unwell individual.
研究表明，在英国，那些照顾患有饮食失调症亲人的人报告了未得到满足的需求，并强调了需要改进的方面。需要更多研究以在更广泛的全国范围内了解这些经历。
根据对英国父母、兄弟姐妹和伴侣进行的规模较小的定性研究结果，开展一项针对在英国有照顾饮食失调症亲人经历的成年人的全国性调查。
对在英国有照顾饮食失调症亲人经历的成年人开展了一项基于网络的横断面调查。
共有360名参与者完成了调查。参与者描述了在儿童和青少年服务机构以及成人服务机构接受护理的经历。那些接受儿童和青少年服务机构护理的人通常报告称护理更及时、在护理中的参与度更高，并且在亲人出院后管理其症状更有信心。在这两种情况下，参与者都指出了一些需要改进的方面，包括更及时地获得护理、改进转诊流程和出院计划，以及增加在亲人护理中的参与度。
这项调查记录了英国照顾饮食失调症亲人的个人经历。儿童和青少年服务机构与成人服务机构的护理经历之间存在明显差异。讨论了临床意义和改进建议，包括改进转诊和出院流程、增加对照顾者自身的参与度和/或支持，以及为不适个体更及时地提供支持服务。
