Sebri Valeria, Dorangricchia Patrizia, Monzani Dario, Marzorati Chiara, Grasso Roberto, Conti Lorenzo, Russo Giuseppe Lo, Provenzano Leonardo, Dumitrascu Andra Diana, Pravettoni Gabriella
Applied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Via Giuseppe Ripamonti, 435, 20141, Milan, Italy.
Laboratory of Behavioral Observation and Research on Human Development, Department of Psychology, Educational Science and Human Movement, University of Palermo, 90128, Palermo, Italy.
J Cancer Educ. 2025 Jan 21. doi: 10.1007/s13187-025-02566-6.
Lung cancer patients generally receive several information regarding their illness characteristics and available intervention. Therefore, patients can experience confusion, leading to anxiety and distress that might damage the relationship with physicians and treatment adherence. Literature showed that implementing decision aid tools during consultation can promote patients' knowledge and awareness about lung cancer and available oncological intervention, improving a shared decision-making process. However, not all lung cancer patients always appreciate decision aids' implementation. The present qualitative study explored patients' opinions and preferences regarding the implementation of decision aids during medical consultation. Twenty-two lung cancer patients who have already attended medical consultations for lung cancer voluntarily participated in four online focus groups carried out between January 2023 and December 2024. A thematic analysis with a bottom-up approach highlighted three main themes: the typology and number of information that patients would have received, the relevance of patient-and-doctor relationship, and the effects of providing additional decision-making tools on patients' emotions and preferences. Findings showed controversial opinions among patients, highlighting the relevance of personalized intervention tailored to patients' preferences. Practical implications are given.
肺癌患者通常会收到关于其疾病特征和可用干预措施的多种信息。因此，患者可能会感到困惑，进而导致焦虑和痛苦，这可能会损害与医生的关系以及治疗依从性。文献表明，在会诊期间使用决策辅助工具可以提高患者对肺癌和可用肿瘤干预措施的了解和认识，改善共同决策过程。然而，并非所有肺癌患者都始终认可决策辅助工具的使用。本定性研究探讨了患者在医疗会诊期间对使用决策辅助工具的意见和偏好。22名已经参加过肺癌医疗会诊的患者自愿参加了2023年1月至2024年12月期间进行的四个在线焦点小组。采用自下而上方法的主题分析突出了三个主要主题：患者会收到的信息类型和数量、医患关系的相关性以及提供额外决策工具对患者情绪和偏好的影响。研究结果显示患者之间存在争议性意见，突出了根据患者偏好进行个性化干预的相关性。文中给出了实际应用建议。
