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传统、补充和整合医学研究中的数据共享理由。

The case for data sharing in traditional, complementary, and integrative medicine research.

作者信息

Ng Jeremy Y

机构信息

Institute of General Practice and Interprofessional Care, University Hospital Tübingen, Tübingen, Germany.

Robert Bosch Center for Integrative Medicine and Health, Bosch Health Campus, Stuttgart, Germany.

出版信息

Integr Med Res. 2025 Mar;14(1):101101. doi: 10.1016/j.imr.2024.101101. Epub 2024 Nov 14.

DOI:10.1016/j.imr.2024.101101
PMID:39834890
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11742618/
Abstract

Traditional, complementary, and integrative medicine (TCIM) research encompasses a diverse range of health practices rooted in various cultural, philosophical, and historical frameworks. As global interest in conducting research in this field grows, the need for rigorous research to support the integration of evidence-based TCIM therapies into mainstream healthcare has become essential. Data sharing is critical to advancing TCIM research by enhancing reproducibility, fostering interdisciplinary collaboration, promoting ethical practices, and addressing global health challenges. Despite its benefits, numerous challenges are associated with data sharing in TCIM, including a lack of standardized practices, cultural sensitivity, intellectual property concerns, and technical barriers in resource-limited settings. This editorial explores the unique nature of TCIM research, emphasizing the importance of data sharing while acknowledging the complexities it entails. Implementing the CARE Principles for Indigenous Data Governance, which prioritize collective benefit, authority to control, responsibility, and ethics, offers a framework for ensuring that data sharing respects indigenous knowledge and cultural sensitivities. Strategies for overcoming barriers to data sharing include developing standardized protocols, investing in research infrastructure, and fostering a culture of openness and collaboration within the TCIM community and beyond. By advancing data sharing practices, TCIM research can contribute to evidence-based healthcare solutions and address global health disparities, ultimately improving health outcomes worldwide.

摘要

传统、补充和整合医学(TCIM)研究涵盖了一系列根植于不同文化、哲学和历史框架的健康实践。随着全球对该领域研究兴趣的增加,开展严谨研究以支持将循证TCIM疗法纳入主流医疗保健变得至关重要。数据共享对于推进TCIM研究至关重要,它可提高可重复性、促进跨学科合作、推动道德实践并应对全球健康挑战。尽管有诸多益处,但TCIM中的数据共享仍面临诸多挑战,包括缺乏标准化实践、文化敏感性、知识产权问题以及资源有限环境中的技术障碍。这篇社论探讨了TCIM研究的独特性质,强调了数据共享的重要性,同时也承认其带来的复杂性。实施《原住民数据治理CARE原则》,该原则将集体利益、控制权、责任和道德置于优先地位,为确保数据共享尊重原住民知识和文化敏感性提供了一个框架。克服数据共享障碍的策略包括制定标准化方案、投资研究基础设施,以及在TCIM社区内外培育开放与合作的文化。通过推进数据共享实践,TCIM研究可为循证医疗保健解决方案做出贡献,并解决全球健康差距问题,最终改善全球健康状况。

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本文引用的文献

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Integr Med Res. 2024 Jun;13(2):101047. doi: 10.1016/j.imr.2024.101047. Epub 2024 May 9.
2
The Brief History of Complementary, Alternative, and Integrative Medicine Terminology and the Development and Creation of an Operational Definition.补充医学、替代医学和整合医学术语简史以及操作定义的制定与发展
Integr Med Res. 2023 Dec;12(4):100978. doi: 10.1016/j.imr.2023.100978. Epub 2023 Jul 28.
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A comprehensive search string informed by an operational definition of complementary, alternative, and integrative medicine for systematic bibliographic database search strategies.一个全面的搜索字符串,由补充、替代和整合医学的操作定义为系统文献数据库搜索策略提供信息。
BMC Complement Med Ther. 2022 Jul 27;22(1):200. doi: 10.1186/s12906-022-03683-1.
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Use of Traditional, Complementary and Integrative Medicine During the COVID-19 Pandemic: A Systematic Review and Meta-Analysis.2019冠状病毒病大流行期间传统、补充和整合医学的使用:系统评价与荟萃分析
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BMC Complement Med Ther. 2022 Apr 12;22(1):104. doi: 10.1186/s12906-022-03556-7.
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