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Mapping the vitiligo patient journey: from awareness to treatment or coping strategies.

作者信息

Valle Y, Lotti T, Towheed S, Sigova J

机构信息

Vitiligo Research Foundation, New York, NY, United States.

Department of Dermatology, University of Studies Guglielmo Marconi, Rome, Italy.

出版信息

Front Rehabil Sci. 2025 Jan 7;5:1511053. doi: 10.3389/fresc.2024.1511053. eCollection 2024.

DOI:10.3389/fresc.2024.1511053
PMID:39839742
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11747489/
Abstract
摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/594c/11747489/7d50e3f6871a/fresc-05-1511053-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/594c/11747489/7d50e3f6871a/fresc-05-1511053-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/594c/11747489/7d50e3f6871a/fresc-05-1511053-g001.jpg

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本文引用的文献

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The dermatology patient journey from initial consultation to diagnosis.皮肤科患者从初次会诊到诊断的就医过程。
J Eur Acad Dermatol Venereol. 2023 Oct;37 Suppl 7:25-26. doi: 10.1111/jdv.18987.
2
Mental Health and Psychosocial Quality-of-Life Burden Among Patients With Vitiligo: Findings From the Global VALIANT Study.白癜风患者的心理健康和心理社会生活质量负担：来自全球 VALIANT 研究的结果。
JAMA Dermatol. 2023 Oct 1;159(10):1124-1128. doi: 10.1001/jamadermatol.2023.2787.
3
Exploring the natural and treatment history of vitiligo: perceptions of patients and healthcare professionals from the global VALIANT study.
探索白癜风的自然病史和治疗史：来自全球 VALIANT 研究的患者和医疗保健专业人员的看法。
Br J Dermatol. 2023 Oct 25;189(5):569-577. doi: 10.1093/bjd/ljad245.
4
Prevalence of Vitiligo Among Adults in the United States.美国成年人白癜风患病率。
JAMA Dermatol. 2022 Jan 1;158(1):43-50. doi: 10.1001/jamadermatol.2021.4724.
5
Creation of a Patient-Centered Journey Map to Improve the Patient Experience: A Mixed Methods Approach.创建以患者为中心的旅程地图以改善患者体验：一种混合方法。
Mayo Clin Proc Innov Qual Outcomes. 2019 Sep 24;3(4):466-475. doi: 10.1016/j.mayocpiqo.2019.07.004. eCollection 2019 Dec.
6
Patient-reported outcomes: A 5-year long study reveals previously unreported therapeutic, demographic, socio-economic, and other correlations in vitiligo.患者报告结局：一项长达 5 年的研究揭示了白癜风治疗、人口统计学、社会经济学和其他以前未报告的相关性。
Dermatol Ther. 2018 Sep;31(5):e12620. doi: 10.1111/dth.12620. Epub 2018 Sep 25.
7
Functional nutrition as integrated approach in vitiligo management.功能性营养作为白癜风管理的综合方法。
Dermatol Ther. 2019 Jul;32(4):e12625. doi: 10.1111/dth.12625. Epub 2018 Aug 28.
8
Unconventional Treatments for Vitiligo: Are They (Un) Satisfactory?白癜风的非常规治疗方法：它们（不）令人满意吗？
Open Access Maced J Med Sci. 2018 Jan 21;6(1):170-175. doi: 10.3889/oamjms.2018.038. eCollection 2018 Jan 25.
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