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患有复杂疾病儿童及其父母从医院出院回家的证据探索:文献综述

Exploration of the Evidence on Discharge From Hospital to Home for Children With Medical Complexity and Their Parents: A Review of the Literature.

作者信息

Mackay Lyndsay, Dewan Tammie, Lal Jaanvi, Hayden K Alix, Chang Una

机构信息

School of Nursing, Trinity Western University, Langley, British Columbia, Canada.

Department of Pediatrics, University of Calgary, Calgary, Alberta, Canada.

出版信息

Child Care Health Dev. 2025 Jan;51(1):e70031. doi: 10.1111/cch.70031.

Abstract

BACKGROUND

Children with medical complexity (CMC) require complex care that parents must independently provide and manage when discharged home from hospital. It is important that parents are adequately prepared to safely transition home from hospital with their child.

METHOD

A synthesis of findings from research articles was conducted to map and summarize available evidence on CMC and their parents' experiences of discharge from hospital to home. A total of 32 studies were included in this review. Thematic analysis was used to analyze and describe the data.

RESULTS

The following key themes were developed during data analysis: preparation and readiness, aids for discharge, overwhelmed with the transition, frustration with time to get home, difficulties with transitions and discharge interventions.

CONCLUSION

These findings demonstrate the importance of taking steps to ensure CMC and their parents undergo a thorough and planned discharge process to prepare parents to confidently provide safe care to their children in the home. Approaches and strategies for comprehensive and safe discharge are provided.

摘要

背景

患有复杂疾病的儿童(CMC)需要复杂的护理,出院回家后父母必须独立提供和管理这些护理。父母做好充分准备,以便与孩子安全地从医院过渡到家中,这一点很重要。

方法

对研究文章的结果进行综合分析,以梳理和总结关于患有复杂疾病的儿童及其父母从医院出院回家经历的现有证据。本综述共纳入32项研究。采用主题分析法对数据进行分析和描述。

结果

数据分析过程中形成了以下关键主题:准备与就绪、出院辅助、过渡不堪重负、对回家时间感到沮丧、过渡困难以及出院干预措施。

结论

这些研究结果表明,采取措施确保患有复杂疾病的儿童及其父母经历全面且有计划的出院过程,让父母有信心在家中为孩子提供安全护理非常重要。文中提供了全面且安全出院的方法和策略。

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