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整合文献与家庭见解:探索支持成年糖尿病患者家庭的需求。

Integrating literature and family insights: exploring the needs of families supporting adults with diabetes.

作者信息

Soares Vânia Lídia, Lemos Sara, Sequeira Carlos, Morais Carminda Soares, Barbieri-Figueiredo Maria do Céu

机构信息

Institute of Biomedical Sciences Abel Salazar, University of Porto, Porto, Portugal.

Center for Health Technology and Services Research, Faculty of Medicine, University of Porto, Porto, Portugal.

出版信息

Front Public Health. 2025 Jan 8;12:1473723. doi: 10.3389/fpubh.2024.1473723. eCollection 2024.

Abstract

INTRODUCTION

The considerable influence that family members can have on diabetes management is well recognized. Therefore, it is crucial for professionals to acknowledge the impact of the diagnosis on family members. This study aimed to comprehensively identify and understand the needs of family members with an adult diagnosed with diabetes using a two-phased research design.

METHODS

Phase 1 was a scoping literature review using databases such as MEDLINE®, CINAHL®, SciELO, and PsycINFO, and gray literature from the Scientific Open Access Repository of Portugal and OpenGrey, focusing on studies from 2017 to 2023, adhering to the Joanna Briggs Institute and PRISMA guidelines. Phase 2 involved a focus group to gather qualitative data on family experiences, which was analyzed using content analysis and following the Consolidated Criteria for Reporting Qualitative Research.

RESULTS FROM BOTH PHASES REVEALED FIVE THEMES

Communication and emotional expression within families, the impact of diabetes on the family, diabetes-specific knowledge, socio-cultural and environmental influences on diabetes management, and communication with healthcare providers. Integrating these findings highlighted the specific needs of families, suggesting that tailored interventions should be developed to enhance diabetes management support and promote overall family well-being.

摘要

引言

家庭成员对糖尿病管理可产生的重大影响已得到充分认识。因此,专业人员认识到糖尿病诊断对家庭成员的影响至关重要。本研究旨在采用两阶段研究设计全面识别并了解成年糖尿病患者家庭成员的需求。

方法

第一阶段是使用MEDLINE®、CINAHL®、SciELO和PsycINFO等数据库以及来自葡萄牙科学开放获取知识库和OpenGrey的灰色文献进行范围界定文献综述,重点关注2017年至2023年的研究,遵循乔安娜·布里格斯研究所和PRISMA指南。第二阶段包括一个焦点小组,以收集有关家庭经历的定性数据,并使用内容分析并遵循定性研究报告统一标准进行分析。

两个阶段的结果揭示了五个主题

家庭内部的沟通与情感表达、糖尿病对家庭的影响、糖尿病特定知识、社会文化和环境对糖尿病管理的影响以及与医疗服务提供者的沟通。整合这些发现突出了家庭的特定需求,表明应制定针对性的干预措施,以加强糖尿病管理支持并促进家庭整体福祉。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5f35/11751045/8579058c2e51/fpubh-12-1473723-g001.jpg

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