Moreno-Gabriel Eduardo, Bielsa-Pascual Jofre, Verdaguer Maria, Carmona-Cervelló Meritxell, Lamonja Vicente Noemí, León Gómez Brenda Biaani, Violan Concepción, Torán-Monserrat Pere
Unitat de Suport a la Recerca Metropolitana Nord, Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Mataró, España; Departamento de Psicología Social, Facultad de Psicología, Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), España; Grup de Recerca en Salut I Societat (GREMSAS), Barcelona, España; Institut d'Investigació Germans Trias i Pujol Research Institute (IGTP), Badalona, España.
Unitat de Suport a la Recerca Metropolitana Nord, Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Mataró, España.
Aten Primaria. 2025 Jun;57(6):103214. doi: 10.1016/j.aprim.2024.103214. Epub 2025 Jan 23.
To describe the experiences of people living with neuropsychological symptomatology associated with long-COVID, as well as identifying the barriers they encounter in their daily lives and the strategies they develop to deal with them.
Descriptive qualitative study following an interpretative phenomenological perspective.
Primary Care Centres in the Northern Metropolitan Area of Barcelona and the Germans Trias i Pujol University Hospital (Badalona), Spain.
34 adults with any persistent neuropsychological symptoms of COVID-19 (>12 weeks since disease onset).
In-depth individual interviews were conducted following a script of open-ended questions to elicit their narratives around the research objective.
3 clusters detailing the life impact of long-COVID and its neuropsychological symptomatology were identified: long-COVID as life-breaking and life-changing; coping strategies; and (ac)knowledge (of) the emerging subjectivity.
From the participants' accounts and the existing literature emerges the relevance of critically integrating lessons learned from analogous syndromes such as fibromyalgia and chronic fatigue, as well as involving patients in the design and implementation (even at the consultation level) of clinical practices that raise awareness of these neuropsychological sequelae (psychoeducation) both to other patients and to caregivers and professionals. This would facilitate a greater and better specialised psychological approach and reduce the stigma that still accompanies the condition.
描述患有与新冠长期症状相关的神经心理学症状的人群的经历，识别他们在日常生活中遇到的障碍以及他们制定的应对策略。
采用解释现象学视角的描述性定性研究。
西班牙巴塞罗那北部大都市区的初级保健中心以及德国人特里亚斯·伊·普约尔大学医院（巴达洛纳）。
34名患有任何持续性新冠病毒神经心理学症状的成年人（自疾病发作起超过12周）。
按照开放式问题脚本进行深入的个人访谈，以引出他们围绕研究目标的叙述。
确定了3个详细描述新冠长期症状及其神经心理学症状对生活影响的类别：新冠长期症状对生活造成破坏且改变生活；应对策略；以及（对）新出现的主观性的（再）认识。
从参与者的叙述和现有文献中可以看出，批判性地整合从纤维肌痛和慢性疲劳等类似综合征中学到的经验教训具有重要意义，并且让患者参与临床实践的设计和实施（甚至在咨询层面）也很重要，这些临床实践旨在提高对这些神经心理学后遗症（心理教育）的认识，面向其他患者以及护理人员和专业人员。这将有助于采取更广泛、更专业的心理方法，并减少仍然伴随着这种疾病的污名化。
