Züger Andrea, Mathies Viktoria, Mehlis Katja, Pauge Sophie, Richter Luise, Surmann Bastian, Ernst Thomas, Menold Natalja, Greiner Wolfgang, Winkler Eva
Department of Medical Oncology, Section Translational Medical Ethics, National Center for Tumor Diseases (NCT), NCT Heidelberg, a partnership between DKFZ and Heidelberg University Hospital, Medical Faculty Heidelberg, Heidelberg University, Heidelberg, Germany
Department of Hematology/Oncology, Jena University Hospital, Jena, Germany.
BMJ Open. 2025 Jan 28;15(1):e081432. doi: 10.1136/bmjopen-2023-081432.
Patient-reported financial effects of a tumour disease in a universal healthcare setting are a multidimensional phenomenon. Actual and anticipated objective financial burden caused by direct medical and non-medical costs as well as indirect costs such as loss of income can lead to subjective financial distress. To better understand subjective financial distress, the presented study explores self-reported determinants for subjective financial distress in German patients with cancer, aiming to inform a new German-language patient-reported outcome measure for determining the financial effects of a tumour disease.
Semistructured interviews with n=18 patients with cancer were conducted between May 2021 and December 2021. Patients were recruited based on a purposive sampling strategy in outpatient and inpatient settings. The interviews were audiorecorded, transcribed verbatim and analysed using qualitative content analysis.
Participants were recruited from two German academic cancer centres, that is, the National Center for Tumor Diseases Heidelberg and Jena University Hospital.
18 patients who had undergone cancer-related therapy for at least 2 months were interviewed (10 females).
Based on the results of the qualitative content analysis, we developed a multicomponent construct of determinants that could influence subjective financial distress. The self-reported determinants can be classified into material (), social (), systemic () and inner personal determinants ().
Subjective financial distress depends not only on material but also on social, systemic and inner personal determinants. Knowledge of these determinants can inform a new comprehensive German-language instrument for measuring self-reported financial effects of a tumour disease.
NCT05319925.
在全民医疗保健环境中，患者报告的肿瘤疾病经济影响是一个多维度现象。直接医疗和非医疗费用以及间接费用（如收入损失）所导致的实际和预期客观经济负担可能会引发主观经济困扰。为了更好地理解主观经济困扰，本研究探讨了德国癌症患者主观经济困扰的自我报告决定因素，旨在为一种新的德语患者报告结局指标提供信息，以确定肿瘤疾病的经济影响。
2021年5月至2021年12月期间，对18名癌症患者进行了半结构式访谈。患者是根据门诊和住院环境中的目的抽样策略招募的。访谈进行了录音，逐字转录，并使用定性内容分析法进行分析。
参与者来自德国的两个学术癌症中心，即海德堡国家肿瘤疾病中心和耶拿大学医院。
对18名接受癌症相关治疗至少2个月的患者进行了访谈（10名女性）。
基于定性内容分析的结果，我们构建了一个多成分的决定因素结构，该结构可能会影响主观经济困扰。自我报告的决定因素可分为物质（）、社会（）、系统（）和个人内在决定因素（）。
主观经济困扰不仅取决于物质因素，还取决于社会、系统和个人内在决定因素。了解这些决定因素可为一种新的综合性德语工具提供信息，用于测量肿瘤疾病的自我报告经济影响。
NCT05319925。
