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抽动秽语综合征的生活质量

Quality of Life in Tourette Syndrome.

作者信息

Cavanna Andrea E

机构信息

Department of Neuropsychiatry, BSMHFT and University of Birmingham, Birmingham, UK; Sobell Department of Motor Neuroscience and Movement Disorders, Institute of Neurology and University College London, London, UK; School of Life and Health Sciences, Aston Brain Centre, Aston University, Birmingham, UK; School of Medicine and Surgery, University of Milano-Bicocca, Milan, Italy.

出版信息

Psychiatr Clin North Am. 2025 Mar;48(1):123-150. doi: 10.1016/j.psc.2024.08.010. Epub 2024 Dec 4.

Abstract

Research conducted since the turn of the millennium has shown that the quality of life in patients with Tourette syndrome is affected by various health-related factors. The condition's chronic nature, along with its social and emotional implications, can significantly diminish the overall quality of life. Both core symptoms-motor and vocal tics-and associated comorbidities can contribute to functional impairments and reduced well-being. However, individual experiences vary widely, with some patients reporting relatively high levels of satisfaction and adaptation. Comprehensive care addressing both symptom management and psychological support is crucial for improving the quality of life for individuals with Tourette syndrome.

摘要

自千禧年之交以来的研究表明,抽动秽语综合征患者的生活质量受到各种与健康相关因素的影响。该病症的慢性性质及其社会和情感影响会显著降低整体生活质量。核心症状——运动性和发声性抽动——以及相关的共病都可能导致功能障碍和幸福感下降。然而,个体经历差异很大,一些患者报告的满意度和适应水平相对较高。针对症状管理和心理支持的综合护理对于提高抽动秽语综合征患者的生活质量至关重要。

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