Pagán Antonio F, Pagán Alejandro L, Hernandez Linda, Cribbet Matthew R, Loveland Katherine A, Acierno Ron
Louis A. Faillace, MD, Department of Psychiatry and Behavioral Sciences, McGovern Medical School, UTHealth Science Center at Houston, UTHealth Houston Behavioral and Biomedical Sciences Building, 1941 East Rd, Houston, TX, 77054, USA.
Department of Psychology, University of California, Davis, CA, USA.
J Racial Ethn Health Disparities. 2025 Jan 29. doi: 10.1007/s40615-025-02295-y.
The present study examined the effects of a culturally adapted intervention, ¡Iniciando! la Adultez, on sleep and health-related quality of life (HRQoL) in Latino young adults with autism spectrum disorder (ASD) and their Spanish-speaking parents. The intervention targeted the transition to adulthood, a period associated with increased challenges in sleep and HRQoL, particularly for underserved Latino populations. Participants included 26 young adults and 38 parents who completed assessments at baseline and post-treatment. The results indicated significant improvements in several HRQoL domains for both groups, with young adults reporting enhanced emotional well-being, social functioning, and general health. Parents experienced notable improvements in subjective sleep quality, sleep latency, and global sleep quality, alongside enhanced emotional well-being and general health. Correlational analyses revealed significant associations between baseline sleep quality and post-treatment HRQoL, acculturative stress, and mental health outcomes, suggesting the interconnectedness of these factors. Parents generally reported poorer sleep and HRQoL than young adults at both time points, highlighting the ongoing challenges they face. Despite some improvements, overall sleep quality remained suboptimal, emphasizing the need for further refinement of interventions. This study underscores the importance of culturally tailored approaches in addressing the unique needs of Latino families affected by ASD and highlights the potential benefits of such interventions in improving sleep and HRQoL. Future research should explore the long-term sustainability of these improvements and address the remaining gaps in sleep quality. The findings contribute to a growing body of evidence supporting the need for culturally sensitive interventions in promoting well-being in marginalized communities.
本研究考察了一种文化适应性干预措施“¡Iniciando! la Adultez”对患有自闭症谱系障碍(ASD)的拉丁裔青年及其讲西班牙语的父母的睡眠和健康相关生活质量(HRQoL)的影响。该干预措施针对向成年期的过渡,这一时期与睡眠和HRQoL方面日益增加的挑战相关,特别是对于服务不足的拉丁裔人群。参与者包括26名青年和38名父母,他们在基线和治疗后完成了评估。结果表明,两组在几个HRQoL领域都有显著改善,青年报告情绪幸福感、社交功能和总体健康状况有所增强。父母在主观睡眠质量、睡眠潜伏期和整体睡眠质量方面有显著改善,同时情绪幸福感和总体健康状况也有所增强。相关分析揭示了基线睡眠质量与治疗后HRQoL、文化适应压力和心理健康结果之间的显著关联,表明这些因素之间存在相互联系。在两个时间点,父母普遍报告睡眠和HRQoL比青年差,突出了他们面临的持续挑战。尽管有一些改善,但总体睡眠质量仍然不理想,强调需要进一步完善干预措施。本研究强调了文化定制方法在满足受ASD影响的拉丁裔家庭独特需求方面的重要性,并突出了此类干预措施在改善睡眠和HRQoL方面的潜在益处。未来的研究应探索这些改善的长期可持续性,并解决睡眠质量方面的剩余差距。这些发现为越来越多的证据做出了贡献,支持在促进边缘化社区福祉方面需要文化敏感的干预措施。