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《孤独症谱系障碍青少年的拉丁美裔家庭过渡项目的文化适应》

The Cultural Adaptation of a Transition Program for Latino Families of Youth with Autism Spectrum Disorder.

机构信息

University of Wisconsin-Madison, Madison, WI.

Texas State University, San Marcos, TX.

出版信息

Fam Process. 2020 Jun;59(2):477-491. doi: 10.1111/famp.12439. Epub 2019 Mar 7.

DOI:10.1111/famp.12439
PMID:30844083
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7191653/
Abstract

During the transition to adulthood, effective and culturally relevant supports are critical for families of youth with autism spectrum disorder (ASD). There is a dearth of documented program development and research on supports for Spanish-speaking Latino families during this life stage. The present work describes the cultural adaptation process of an evidence-based transition program for Latino families of youth with ASD. A model of the actions necessary to meaningfully conduct a cultural adaptation in this context is described. After implementing the culturally adapted program titled Juntos en la Transición with five Spanish-speaking families, parents reported high social validity of the program through surveys and interviews. The cultural adaptation process followed in this work is important for the further development of programs that address the transition needs of Latino youth with ASD and their families. Our impressions may also be useful to those who aim to develop culturally sensitive and ecologically valid multifamily group intervention programs for families from cultural and linguistic minority groups.

摘要

在向成年期过渡期间,对于自闭症谱系障碍(ASD)青年的家庭来说,有效且文化相关的支持至关重要。在这个生命阶段,针对讲西班牙语的拉丁裔家庭的支持计划,缺乏有文件记录的方案制定和研究。目前的工作描述了为 ASD 青年的拉丁裔家庭制定的循证过渡计划的文化适应过程。描述了在这种情况下进行有意义的文化适应所需的行动模型。在与五户讲西班牙语的家庭实施了名为“Juntos en la Transición”的文化适应计划后,家长们通过调查和访谈报告了该计划的高度社会有效性。在这项工作中遵循的文化适应过程对于进一步制定满足拉丁裔 ASD 青年及其家庭过渡需求的计划非常重要。我们的印象对于那些旨在为文化和语言少数群体的家庭制定文化敏感和生态有效的多元家庭小组干预计划的人来说可能也很有用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/aafa/7191653/1f19fdae0fc5/nihms-1579237-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/aafa/7191653/1f19fdae0fc5/nihms-1579237-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/aafa/7191653/1f19fdae0fc5/nihms-1579237-f0001.jpg

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Autism Adulthood. 2024 Jun 17;6(2):119-127. doi: 10.1089/aut.2023.0041. eCollection 2024 Jun.
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Autism interventions designed or adapted for the Black/African American population: A systematic review.为黑人/非裔美国人群设计或改编的自闭症干预措施:一项系统综述。
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The Role of Pathways Early Autism Intervention in Improving Social Skills and Respeto for Young Hispanic Autistic Children.早期自闭症干预途径在提高西班牙裔自闭症幼儿社交技能和尊重方面的作用
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