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本文引用的文献

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CBTRUS Statistical Report: Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2015-2019.美国 2015-2019 年确诊的原发性脑和其他中枢神经系统肿瘤 CBTRUS 统计报告。
Neuro Oncol. 2022 Oct 5;24(Suppl 5):v1-v95. doi: 10.1093/neuonc/noac202.
2
An Indigenous Lens on Priorities for the Canadian Brain Research Strategy.从原住民视角看加拿大脑研究战略的优先事项。
Can J Neurol Sci. 2023 Jan;50(1):96-98. doi: 10.1017/cjn.2021.501. Epub 2021 Dec 1.
3
How Should Allopathic Physicians Respond to Native American Patients Hesitant About Allopathic Medicine?顺势疗法医生应如何回应对顺势疗法药物持犹豫态度的美洲原住民患者?
AMA J Ethics. 2020 Oct 1;22(10):E837-844. doi: 10.1001/amajethics.2020.837.
4
Indigenous Research Ethics Requirements: An Examination of Six Tribal Institutional Review Board Applications and Processes in the United States.本土研究伦理要求:对美国六个部落机构审查委员会申请和程序的考察。
J Empir Res Hum Res Ethics. 2020 Oct;15(4):279-291. doi: 10.1177/1556264620912103. Epub 2020 Apr 1.
5
Ethical Issues Posed by Field Research Using Highly Portable and Cloud-Enabled Neuroimaging.高度便携和云启用神经影像学现场研究带来的伦理问题。
Neuron. 2020 Mar 4;105(5):771-775. doi: 10.1016/j.neuron.2020.01.041.
6
Advances in MRI Methodology.磁共振成像方法学的进展。
Int Rev Neurobiol. 2018;141:31-76. doi: 10.1016/bs.irn.2018.08.008. Epub 2018 Sep 14.
7
Neuroethics Questions to Guide Ethical Research in the International Brain Initiatives.神经伦理学问题指导国际脑计划中的伦理研究。
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8
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9
Reconceptualizing determinants of health: barriers to improving the health status of First Nations peoples.重新认识健康的决定因素:改善原住民健康状况的障碍
Can J Public Health. 2014 May 9;105(3):e209-13. doi: 10.17269/cjph.105.4308.
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Practical approaches to incidental findings in brain imaging research.脑成像研究中偶然发现的实用处理方法。
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美国和加拿大本土社区便携式磁共振成像仪的实现。

The Realization of Portable MRI for Indigenous Communities in the USA and Canada.

作者信息

Birly Shana, Teeple Angela, Illes Judy

机构信息

TUFTS GRADUATE SCHOOL OF BIOMEDICAL SCIENCE, BOSTON, MA, USA.

UNIVERSITY OF MINNESOTA, MINNEAPOLIS, MN, USA.

出版信息

J Law Med Ethics. 2024;52(4):816-823. doi: 10.1017/jme.2024.159. Epub 2025 Jan 31.

DOI:10.1017/jme.2024.159
PMID:39885755
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11788666/
Abstract

The paucity of existing baseline data for understanding neurologic health and the effects of injury on people from Indigenous populations is causally related to the limited representation of communities in neuroimaging research to date. In this paper, we explore ways to change this trend in the context of portable MRI, where portability has opened up imaging to communities that have been neglected or inaccessible in the past. We discuss pathways to engage local leadership, foster the participation of communities for this unprecedented opportunity, and empower field-based researchers to bring the holistic worldview embraced by Indigenous communities to neuroimaging research.

摘要

目前用于了解神经健康以及损伤对原住民人群影响的基线数据匮乏,这与迄今为止神经影像学研究中社区代表性有限存在因果关系。在本文中,我们探讨了在便携式磁共振成像(MRI)背景下改变这一趋势的方法,便携式MRI使过去被忽视或难以接触到的社区也能够进行成像。我们讨论了如何与当地领导层合作、促进社区参与这一前所未有的机会,以及如何让实地研究人员将原住民社区所秉持的整体世界观引入神经影像学研究。