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残疾评定指标的比较性能

Comparative performance of disability measures.

作者信息

Landes Scott D, Hall Jean P, Swenor Bonnielin K, Vaitsiakhovich Nastassia

机构信息

Department of Sociology and Aging Studies Institute, Maxwell School of Citizenship and Public Affairs, Syracuse University, Syracuse, New York, United States of America.

Institute for Health & Disability Policy Studies and Research & Training Center on Independent Living, University of Kansas, Lawrence, Kansas, United States of America.

出版信息

PLoS One. 2025 Jan 31;20(1):e0318745. doi: 10.1371/journal.pone.0318745. eCollection 2025.

DOI:10.1371/journal.pone.0318745
PMID:39888919
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11785326/
Abstract

Researchers and federal agencies are currently discussing the best way to measure disability in US federal surveys. One idea being discussed is expanding/supplementing the question sets commonly used to capture disability status in order to better capture a broader segment of the disabled population. We used data from the 2010-2018 National Health Interview Survey to examine the performance of questions commonly used to measure disability in the US-the ACS-6 and Washington Group Short Set questions-in capturing intellectual and developmental disabilities, mental health disabilities, and physical health disabilities. We found that neither set of disability questions was sufficient to fully capture these disability statuses. We contend that current disability questions used in US population surveys must be expanded/supplemented in order to increase the inclusiveness of disability measurement, and thereby, improve efforts to reduce disparities experienced by the disabled population.

摘要

研究人员和联邦机构目前正在讨论在美国联邦调查中衡量残疾情况的最佳方法。正在讨论的一个想法是扩展/补充通常用于获取残疾状况的问题集,以便更好地涵盖更广泛的残疾人群体。我们使用了2010 - 2018年国家健康访谈调查的数据,来检验美国常用的衡量残疾情况的问题——美国社区调查6项问题(ACS - 6)和华盛顿小组简短问题集——在捕捉智力和发育障碍、心理健康障碍以及身体健康障碍方面的表现。我们发现,这两组残疾问题都不足以完全捕捉这些残疾状况。我们认为,美国人口调查中目前使用的残疾问题必须加以扩展/补充,以提高残疾衡量的包容性,从而改进为减少残疾人群体所经历的差异而做出的努力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/91f8/11785326/48e2fd81b038/pone.0318745.g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/91f8/11785326/3ff45c06a117/pone.0318745.g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/91f8/11785326/48e2fd81b038/pone.0318745.g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/91f8/11785326/3ff45c06a117/pone.0318745.g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/91f8/11785326/48e2fd81b038/pone.0318745.g002.jpg

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本文引用的文献

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Performance of the Washington Group questions in measuring blindness and deafness.华盛顿小组问题在测量失明和失聪方面的表现。
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Counting everyone: evidence for inclusive measures of disability in federal surveys.全面统计:联邦调查中残疾包容性衡量标准的证据
Health Aff Sch. 2024 Aug 21;2(9):qxae106. doi: 10.1093/haschl/qxae106. eCollection 2024 Sep.
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Disability Mortality Disparity: Risk Of Mortality For Disabled Adults Nearly Twice That For Nondisabled Adults, 2008-19.
残疾人口死亡率差异:2008-2019 年,残疾成年人的死亡率几乎是非残疾成年人的两倍。
Health Aff (Millwood). 2024 Aug;43(8):1128-1136. doi: 10.1377/hlthaff.2023.01197.
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Counting disability in the National Health Interview Survey and its consequence: Comparing the American Community Survey to the Washington Group disability measures.国家健康访谈调查中的残疾人口统计及其后果:美国社区调查与华盛顿残疾组测量方法的比较。
Disabil Health J. 2024 Apr;17(2):101553. doi: 10.1016/j.dhjo.2023.101553. Epub 2023 Nov 14.
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Comparing Measures Of Functional Difficulty With Self-Identified Disability: Implications For Health Policy.比较功能障碍测量与自我认定残疾:对健康政策的启示。
Health Aff (Millwood). 2022 Oct;41(10):1433-1441. doi: 10.1377/hlthaff.2022.00395.
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National Prevalence of Disability and Disability Types Among Adults in the US, 2019.美国成年人 2019 年残疾状况和残疾类型的全国流行率。
JAMA Netw Open. 2021 Oct 1;4(10):e2130358. doi: 10.1001/jamanetworkopen.2021.30358.
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Identifying People With Intellectual and Developmental Disabilities in National Population Surveys.在全国性人口调查中识别智障和发育障碍人士。
Intellect Dev Disabil. 2019 Oct;57(5):376-389. doi: 10.1352/1934-9556-57.5.376.
8
Comparing estimates of disability prevalence using federal and international disability measures in national surveillance.在国家监测中使用联邦和国际残疾措施比较残疾流行率的估计值。
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Persons with disabilities as an unrecognized health disparity population.残疾人作为一个未被认识到的健康差异人群。
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