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癌症患者的临终关怀偏好:越南的一项横断面研究。

End-of-life care preferences among cancer patients: A cross-sectional study in Vietnam.

作者信息

Hoang Thi Ngoc Sen, Duong Vy Duyen, Ngo Thi Thu Huyen, Hoang Thi Xuan Huong

机构信息

Faculty of Nursing, Da Nang University of Medical Technology and Pharmacy, 99 Hung Vuong street, Hai Chau District, Da Nang, 550000, Viet Nam.

Faculty of Nursing, Phenikaa University, Yen Nghia, Ha Dong district, Hanoi, 100000, Viet Nam.

出版信息

Eur J Oncol Nurs. 2025 Feb;74:102813. doi: 10.1016/j.ejon.2025.102813. Epub 2025 Jan 28.

DOI:10.1016/j.ejon.2025.102813
PMID:39892197
Abstract

PURPOSE

Honoring the end-of-life care preferences of cancer patients is indispensable for improving both the quality of life of patients and the quality of care they receive. This study aimed to explore end-of-life care preferences among cancer patients and related factors.

METHODS

The cross-sectional study was conducted in a primary oncology hospital. G∗power was used to calculate the sample size. Convenience and proportional sampling methods were applied to collect data. Data collection was conducted from December 2023 to May 2024. Three instruments were used to investigate: 1) general and health information, 2) experiences and attitudes with end-of-life care for relatives, and 3) end-of-life care preferences. Data were analyzed using by the Fisher exact test.

RESULTS

There were 280 participants in the study. The most important preferences of cancer patients were receiving the full truth regarding their illness, relieving distressing symptoms, having loved ones around when needed, being treated both physically and psychologically, not being a physical or psychological burden to family, and feeling meaningful life. The lowest percentage of agreement was for using active euthanasia. The findings showed difference in end-of-life care preferences between satisfaction with life, the experience of witnessing the relatives passing away at home, and attitude toward being remembered after death (p-values of 0.03, 0.02, and 0.04, respectively).

CONCLUSION

It is vital for medical staff to understand end-of-life care preferences in order to provide appropriate support for cancer patients, thereby optimizing their quality of life in the final stage and improving the quality of care.

摘要

目的

尊重癌症患者的临终关怀偏好对于提高患者生活质量和他们所接受的护理质量至关重要。本研究旨在探讨癌症患者的临终关怀偏好及相关因素。

方法

该横断面研究在一家肿瘤专科医院进行。使用G∗power计算样本量。采用便利抽样和比例抽样方法收集数据。数据收集时间为2023年12月至2024年5月。使用三种工具进行调查:1)一般和健康信息,2)对亲属临终关怀的经历和态度,3)临终关怀偏好。采用Fisher精确检验分析数据。

结果

本研究共有280名参与者。癌症患者最重要的偏好是了解关于其疾病的全部真相、缓解痛苦症状、在需要时有亲人陪伴、接受身心治疗、不给家人造成身体或心理负担以及感受生活的意义。对使用主动安乐死的赞同率最低。研究结果显示,在生活满意度、在家目睹亲属去世的经历以及对死后被铭记的态度方面,临终关怀偏好存在差异(p值分别为0.03、0.02和0.04)。

结论

医护人员了解临终关怀偏好对于为癌症患者提供适当支持至关重要,从而优化他们在生命最后阶段的生活质量并提高护理质量。

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