泰国南部基于普通人群的对临终关怀偏好的研究：一项横断面调查。
General population-based study on preferences towards end-of-life care in Southern Thailand: a cross-sectional survey.
机构信息
Department of Psychiatry, Faculty of Medicine, Prince of Songkla University, 90110, Hat Yai, Songkhla, Thailand.
出版信息
BMC Palliat Care. 2022 Mar 14;21(1):36. doi: 10.1186/s12904-022-00926-3.
BACKGROUND
End-of-life care preferences are potentially due to individual choice and feature variation due to culture and beliefs. This study aims to examine end-of-life care preferences and any associated factors, among the general Thai population. This could inform physicians in regards to how to optimize the quality of life for patients that are near the end of their lives.
METHODS
A cross-sectional study surveyed the general population in the Thai province of Songkhla; from January to April 2021. The questionnaires inquired about: 1) demographic information, 2) experiences with end-of-life care for their relatives, and 3) end-of-life care preferences. To determine end-of-life preferences, the data were analyzed using descriptive statistics. The data concerning patient demographics and end-of-life care preferences were compared using Fisher's exact test.
RESULTS
The majority of the 1037 participants (67.6%) were female. The mean age among the adult and older adult groups were 40.9 ± 12.2, 70.0 ± 5.1, respectively. Half of them (48%) had an experience of observing someone die and 58% were satisfied with the care that their relatives had received. Most participants identified the following major end-of-life care preferences: having loved ones around (98.1%), being free from distressing symptoms (95.8%), receiving the full truth (95.0%), and having meaning in their lives (95.0%). There were no statistically significant differences in regards to end-of-life care preferences apart from being involved in treatment decisions, between adult and older adult groups.
CONCLUSION
There was only one difference between the end-of-life preferences of the adult group versus the older adult group in regards to the topic of patient involvement in treatment decisions. Furthermore, receiving the full truth regarding their illness, being free from distressing symptoms, having loved ones around, and living with a sense of meaning were important end-of-life care preferences for both groups. Therefore, these should be taken into account when developing strategies towards improving patient life quality during their end-of-life period.
背景
临终关怀偏好可能是由于个人选择，并因文化和信仰的不同而呈现出特征上的差异。本研究旨在调查泰国普通人群的临终关怀偏好及其相关因素。这可以为医生提供信息，帮助那些生命即将走到尽头的患者提高生活质量。
方法
本横断面研究于 2021 年 1 月至 4 月在泰国宋卡省进行，调查了普通人群。调查问卷询问了：1）人口统计学信息，2）亲属临终关怀经历，以及 3）临终关怀偏好。为了确定临终关怀偏好，使用描述性统计对数据进行了分析。使用 Fisher 精确检验比较了患者人口统计学信息和临终关怀偏好数据。
结果
1037 名参与者中（67.6%）大多数为女性。成年组和老年组的平均年龄分别为 40.9 ± 12.2、70.0 ± 5.1。他们中有一半（48%）观察过有人死亡，58%对亲属接受的护理感到满意。大多数参与者认为以下是主要的临终关怀偏好：亲人在身边（98.1%）、没有痛苦症状（95.8%）、了解全部真相（95.0%）、生活有意义（95.0%）。在参与治疗决策方面，成年组和老年组的临终关怀偏好除了这一点外，没有统计学上的显著差异。
结论
在患者参与治疗决策方面，成年组与老年组的临终关怀偏好只有一个差异。此外，让患者了解全部病情、没有痛苦症状、亲人在身边、生活有意义是两组都非常重视的临终关怀偏好。因此，在制定改善患者临终阶段生活质量的策略时，应考虑这些因素。
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