Tan Mark Kiak Min
Medical Ethics & Law Department, Faculty of Medicine, Universiti Teknologi MARA (UiTM), Kuala Lumpur, Malaysia.
Asian Bioeth Rev. 2024 Sep 23;17(1):117-128. doi: 10.1007/s41649-024-00313-5. eCollection 2025 Jan.
The dilemmas and uncertainties related to determining mental capacity and surrogate decision-making are universally recognised as one of the most important concepts in the field of clinical ethics. In Malaysia, healthcare practitioners often find both determining decision-making capacity of patients, and identifying surrogate decision makers for incapacitated patients confusing. This paper explores the concepts of decision-making capacity and surrogate decision-making, identifying key components and associated principles such as substituted judgement and best interests. It reviews current provisions and guidances available in Malaysia that are related to these issues, including the Power of Attorney Act 1949 (revised 1990), Mental Health Act 2001, and various guidelines. It then highlights the challenges encountered in the local clinical setting due to the lack of specific legislation and clear guidance. Finally, this paper provides recommendations for improvements to address these issues in order to safeguard both the clinical practice of healthcare professionals and the rights of patients. These recommendations include the establishment of a regulatory framework with four main domains: clear and objective criteria for mental capacity assessment, provisions for advance decision-making while patients still possess mental capacity, a ladder or hierarchy of surrogate decision-makers, and provisions for appropriate surrogate decision-making standards, as well as the need for advocacy and awareness education among both the general public and healthcare professionals.
与确定心智能力和替代决策相关的困境和不确定性,被普遍认为是临床伦理领域最重要的概念之一。在马来西亚,医疗从业者常常觉得,确定患者的决策能力以及为无行为能力患者确定替代决策者这两件事都令人困惑。本文探讨了决策能力和替代决策的概念,确定了关键要素以及诸如替代判断和最佳利益等相关原则。本文回顾了马来西亚目前与这些问题相关的规定和指南,包括1949年《代理权法》(1990年修订)、2001年《精神健康法》以及各种指南。然后强调了由于缺乏具体立法和明确指南,在当地临床环境中遇到的挑战。最后,本文提出了改进建议以解决这些问题,从而保障医疗专业人员的临床实践和患者的权利。这些建议包括建立一个有四个主要领域的监管框架:心智能力评估的清晰客观标准、患者仍具备心智能力时的预先决策规定、替代决策者的阶梯或层级,以及适当替代决策标准的规定,还有在公众和医疗专业人员中开展宣传和提高认识教育的必要性。