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Asian Bioeth Rev. 2024 Sep 23;17(1):117-128. doi: 10.1007/s41649-024-00313-5. eCollection 2025 Jan.
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本文引用的文献

1
Advance Care Planning in Malaysia.马来西亚的预先医疗指示计划。
Z Evid Fortbild Qual Gesundhwes. 2023 Aug;180:103-106. doi: 10.1016/j.zefq.2023.05.019. Epub 2023 Jun 23.
2
Regulating advance decision-making: potential and challenges for Malaysia.规范预先决策:马来西亚面临的潜力与挑战。
Asian Bioeth Rev. 2019 Mar 22;11(1):111-122. doi: 10.1007/s41649-019-00078-2. eCollection 2019 Mar.
3
Considerations for Introducing Legislation on Advance Decisions in Malaysia.马来西亚引入预先决定立法的考量因素
Asian Bioeth Rev. 2018 Mar 17;10(1):87-92. doi: 10.1007/s41649-018-0048-x. eCollection 2018 Mar.
4
Adult palliative care 2004-2030 population study: estimates and projections in Malaysia.2004-2030 年马来西亚成人姑息治疗人口研究:估计数和预测。
BMJ Support Palliat Care. 2022 May;12(e1):e129-e136. doi: 10.1136/bmjspcare-2020-002283. Epub 2020 Aug 21.
5
Who Decides When a Patient Can't? Statutes on Alternate Decision Makers.谁来决定患者何时无法做出决定?关于替代决策者的法规。
N Engl J Med. 2017 Apr 13;376(15):1478-1482. doi: 10.1056/NEJMms1611497.

确定心理能力和识别替代决策者:马来西亚在医疗决策方面需要更明确的指导。

Determining Mental Capacity and Identifying Surrogates: The Need for Clearer Guidance on Medical Decision-Making in Malaysia.

作者信息

Tan Mark Kiak Min

机构信息

Medical Ethics & Law Department, Faculty of Medicine, Universiti Teknologi MARA (UiTM), Kuala Lumpur, Malaysia.

出版信息

Asian Bioeth Rev. 2024 Sep 23;17(1):117-128. doi: 10.1007/s41649-024-00313-5. eCollection 2025 Jan.

DOI:10.1007/s41649-024-00313-5
PMID:39896086
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11785895/
Abstract

The dilemmas and uncertainties related to determining mental capacity and surrogate decision-making are universally recognised as one of the most important concepts in the field of clinical ethics. In Malaysia, healthcare practitioners often find both determining decision-making capacity of patients, and identifying surrogate decision makers for incapacitated patients confusing. This paper explores the concepts of decision-making capacity and surrogate decision-making, identifying key components and associated principles such as substituted judgement and best interests. It reviews current provisions and guidances available in Malaysia that are related to these issues, including the Power of Attorney Act 1949 (revised 1990), Mental Health Act 2001, and various guidelines. It then highlights the challenges encountered in the local clinical setting due to the lack of specific legislation and clear guidance. Finally, this paper provides recommendations for improvements to address these issues in order to safeguard both the clinical practice of healthcare professionals and the rights of patients. These recommendations include the establishment of a regulatory framework with four main domains: clear and objective criteria for mental capacity assessment, provisions for advance decision-making while patients still possess mental capacity, a ladder or hierarchy of surrogate decision-makers, and provisions for appropriate surrogate decision-making standards, as well as the need for advocacy and awareness education among both the general public and healthcare professionals.

摘要

与确定心智能力和替代决策相关的困境和不确定性,被普遍认为是临床伦理领域最重要的概念之一。在马来西亚,医疗从业者常常觉得,确定患者的决策能力以及为无行为能力患者确定替代决策者这两件事都令人困惑。本文探讨了决策能力和替代决策的概念,确定了关键要素以及诸如替代判断和最佳利益等相关原则。本文回顾了马来西亚目前与这些问题相关的规定和指南,包括1949年《代理权法》(1990年修订)、2001年《精神健康法》以及各种指南。然后强调了由于缺乏具体立法和明确指南,在当地临床环境中遇到的挑战。最后,本文提出了改进建议以解决这些问题,从而保障医疗专业人员的临床实践和患者的权利。这些建议包括建立一个有四个主要领域的监管框架:心智能力评估的清晰客观标准、患者仍具备心智能力时的预先决策规定、替代决策者的阶梯或层级,以及适当替代决策标准的规定,还有在公众和医疗专业人员中开展宣传和提高认识教育的必要性。