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七国集团愿景中的“弱势群体”:患有复杂疾病的儿童及对特定策略的呼吁

The "Vulnerable" in the G7's Vision: Children With Medical Complexities and the Call for Specific Strategies.

作者信息

Kaneda Yudai, Miyatake Hirotomo, Ozaki Akihiko

机构信息

Epidemiology and Public Health, School of Medicine, Hokkaido University, Hokkaido, JPN.

Pediatrics, Home-Care Clinic, Orange Medical & Social Services, Fukui, JPN.

出版信息

Cureus. 2025 Jan 1;17(1):e76765. doi: 10.7759/cureus.76765. eCollection 2025 Jan.

DOI:10.7759/cureus.76765
PMID:39897202
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11785822/
Abstract

The G7 Hiroshima Summit (May 19-21, 2023) established the "G7 Hiroshima Vision for Fair Access to Medical Countermeasures (MCMs)", which includes vaccines, drugs, and antidotes for chemical, biological, radiological, and nuclear emergencies. The Summit also led to the creation of the "Medical Countermeasures Delivery Partnership." This initiative aims to ensure equitable access to MCMs, emphasizing principles like equity, inclusivity, efficiency, affordability, quality, accountability, agility, and speed. Japan's extensive experience positions it to lead globally in developing support systems for vulnerable populations, particularly children with medical complexities (CMCs). Despite this, the Summit's discussions lacked specificity in addressing these children's unique needs. Advances in medical technology have increased the number of CMCs, highlighting the importance of home-based advanced care. Our experience shows that CMCs can participate in activities such as excursions and hikes with proper preparations, including adequate oxygen and electricity and broader societal support. Recognizing CMCs as unique community members is crucial for promoting social justice, human rights, and societal innovation. The G7 communique's vague reference to 'vulnerable people' underscores the need for more precise and individualized approaches.

摘要

七国集团广岛峰会(2023年5月19日至21日)确立了“七国集团广岛公平获取医疗对策愿景”,其中包括用于应对化学、生物、放射和核紧急情况的疫苗、药物及解毒剂。峰会还促成了“医疗对策交付伙伴关系”的建立。该倡议旨在确保公平获取医疗对策,强调公平、包容、效率、可负担性、质量、问责制、灵活性和速度等原则。日本拥有丰富经验,有能力在全球率先为弱势群体,尤其是患有复杂疾病的儿童(CMC)建立支持体系。尽管如此,峰会讨论在解决这些儿童的独特需求方面缺乏具体性。医疗技术的进步增加了患有复杂疾病儿童的数量,凸显了居家高级护理的重要性。我们的经验表明,通过适当准备,包括充足的氧气和电力以及更广泛的社会支持,患有复杂疾病的儿童可以参加远足和徒步旅行等活动。将患有复杂疾病的儿童视为独特的社区成员对于促进社会正义、人权和社会创新至关重要。七国集团公报对“弱势群体”的模糊提及凸显了采取更精确和个性化方法的必要性。

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本文引用的文献

1
Emotional impacts of excursions on parents of children with medical complexity.患有复杂疾病儿童的父母远足的情绪影响。
Pediatr Int. 2023 Jan-Dec;65(1):e15683. doi: 10.1111/ped.15683.
2
Possibility for Children with Medical Complexities to Reach a 3000-m Peak: A Report of 2 Cases.患有复杂疾病的儿童登顶 3000 米高峰的可能性:2 例报告。
Wilderness Environ Med. 2023 Sep;34(3):383-387. doi: 10.1016/j.wem.2023.05.008. Epub 2023 Jul 10.
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Challenges when going on excursions with children with medical complexity in Japan.在日本带患有复杂疾病的儿童外出旅行时面临的挑战。
Pediatr Int. 2023 Jan;65(1):e15403. doi: 10.1111/ped.15403.
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Principles of Managing Children with Medical Complexity and a New Delivery Model.管理患有复杂疾病儿童的原则及一种新的服务模式。
Mo Med. 2019 Mar-Apr;116(2):134-139.