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本文引用的文献

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Role of social media in the presentation of disorders of gut-brain interaction: Review and recommendations.社交媒体在肠道-脑互动障碍呈现中的作用:综述与建议
J Gastroenterol Hepatol. 2024 Nov;39(11):2281-2292. doi: 10.1111/jgh.16698. Epub 2024 Jul 28.
2
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JPEN J Parenter Enteral Nutr. 2024 Aug;48(6):693-699. doi: 10.1002/jpen.2656. Epub 2024 Jun 8.
3
Transition from Paediatric to adult health services: Aspirations and practices of human flourishing.从儿科到成人保健服务的转变:人类繁荣的愿望和实践。
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2278904. doi: 10.1080/17482631.2023.2278904. Epub 2023 Nov 23.
4
ESPEN guideline on chronic intestinal failure in adults - Update 2023.成人慢性肠衰竭的ESPEN指南 - 2023年更新版
Clin Nutr. 2023 Oct;42(10):1940-2021. doi: 10.1016/j.clnu.2023.07.019. Epub 2023 Jul 29.
5
ESPEN practical guideline: Home parenteral nutrition.ESPEN 实践指南:家庭肠外营养。
Clin Nutr. 2023 Mar;42(3):411-430. doi: 10.1016/j.clnu.2022.12.003. Epub 2023 Jan 9.
6
Characteristics of adult patients with chronic intestinal failure due to short bowel syndrome: An international multicenter survey.成人短肠综合征相关慢性肠衰竭患者的特征:一项国际多中心调查。
Clin Nutr ESPEN. 2021 Oct;45:433-441. doi: 10.1016/j.clnesp.2021.07.004. Epub 2021 Jul 28.
7
The unique role of the social worker within the Hospital at Home care delivery team.社会工作者在居家医院护理服务团队中的独特作用。
Soc Work Health Care. 2021;60(4):354-368. doi: 10.1080/00981389.2021.1894308. Epub 2021 Mar 1.
8
The experience of financial burden for people with multimorbidity: A systematic review of qualitative research.患有多种疾病的人群的经济负担体验:定性研究的系统评价。
Health Expect. 2021 Apr;24(2):282-295. doi: 10.1111/hex.13166. Epub 2020 Dec 2.
9
Home Parenteral Nutrition Patient-Reported Outcome Questionnaire: Sensitive to Quality of Life Differences Among Chronic and Prolonged Acute Intestinal Failure Patients.家庭肠外营养患者报告结局问卷:能敏感反映慢性和迁延性急性肠衰竭患者生活质量的差异。
JPEN J Parenter Enteral Nutr. 2021 Sep;45(7):1475-1483. doi: 10.1002/jpen.2040. Epub 2020 Nov 21.
10
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社会工作者在接受家庭肠外营养的成年人评估与管理中的作用。

The role of the social worker in the assessment and management of adults receiving Home Parenteral Nutrition.

作者信息

Carey Sharon, Brown Shannyn, Ferrie Suzie

机构信息

Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia.

Nutrition and Dietetics Department, Royal Prince Alfred Hospital, Sydney, NSW, Australia.

出版信息

Eur J Clin Nutr. 2025 Jun;79(6):499-503. doi: 10.1038/s41430-024-01555-0. Epub 2025 Feb 3.

DOI:10.1038/s41430-024-01555-0
PMID:39901017
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12151858/
Abstract

People diagnosed with Intestinal Failure (IF) requiring Home Parenteral Nutrition (HPN) have complex medical and nutritional requirements. To date, assessment for, and ongoing management of, HPN has relied on medical, nursing and dietetic input. However, success in assessing suitability for HPN and ongoing management is often reliant on non-medical factors. This paper aims to outline the critical clinical role the social worker can play and their scope of practice in assessing and managing people requiring HPN. This includes assessment across medical, psychosocial, financial, legal, quality-of-life and healthcare-related domains. This perspective paper highlights the vast scope in which the social worker can support people diagnosed with IF requiring HPN. More research is required to quantify the value of the social worker as a key member of the multidisciplinary IF team.

摘要

被诊断为需要家庭肠外营养(HPN)的肠衰竭(IF)患者有复杂的医疗和营养需求。迄今为止,HPN的评估及持续管理一直依赖于医学、护理和饮食方面的投入。然而,评估HPN适用性及进行持续管理的成功往往依赖于非医学因素。本文旨在概述社会工作者在评估和管理需要HPN的患者时可发挥的关键临床作用及其实践范围。这包括跨医学、心理社会、财务、法律、生活质量和医疗保健相关领域的评估。这篇观点性论文强调了社会工作者在支持被诊断为IF且需要HPN的患者方面的广阔范围。需要更多研究来量化社会工作者作为多学科IF团队关键成员的价值。