Department of General, Gastroenterological and Oncological Surgery, Medical University of Warsaw, Warsaw, Poland.
Institute of Genetics and Animal Biotechnology of the Polish Academy of Sciences, Warsaw, Mazowieckie, Poland.
JPEN J Parenter Enteral Nutr. 2021 Jul;45(5):991-998. doi: 10.1002/jpen.1969. Epub 2020 Aug 5.
Quality of life (QOL) of home parenteral nutrition (HPN) patients is a critical issue for functioning and survival. This study evaluates the roles of sexual function (SF), self-efficacy (SE), and the use of social media (USM) in the QOL of HPN patients.
The study model investigates the independent variables USM and SF and the dependent variable QOL, and SE is a mediator variable between SF and USM.
We included 203 participants with HPN who completed self-administered, validated questionnaires for QOL, SF, SE, and USM. Statistical analysis included a t-test, Sobel test, bootstrapping method, and Pearson correlations between variances. The mean HPN duration was 10.5 ± 8 years. Results show a significant correlation between QOL scores and SF (P = .001). USM was positively correlated with SE (P = .001). SE as a mediator between USM and SF was supported by significant results in the Sobel test. Patients with a stoma were significantly less sexually active and had lower SE ratings than those without a stoma.
Physical changes that affect SE and boost social relationships by allowing emotional support through social networks are important factors for QOL improvement. These findings may guide health professionals in the management of HPN patients.
家庭肠外营养（HPN）患者的生活质量（QOL）是其功能和生存的关键问题。本研究评估了性功能（SF）、自我效能（SE）和社交媒体使用（USM）在 HPN 患者 QOL 中的作用。
研究模型调查了 USM 和 SF 这两个自变量，以及 QOL 这一因变量，SE 是 SF 和 USM 之间的中介变量。
我们纳入了 203 名接受 HPN 的患者，他们完成了自我管理的、经过验证的 QOL、SF、SE 和 USM 问卷。统计分析包括 t 检验、Sobel 检验、自举法和方差间的 Pearson 相关性。HPN 的平均持续时间为 10.5 ± 8 年。结果显示 QOL 评分与 SF 之间存在显著相关性（P =.001）。USM 与 SE 呈正相关（P =.001）。Sobel 检验支持 SE 作为 USM 和 SF 之间的中介变量。有造口的患者在性功能方面明显不活跃，自我效能评分也较低。
影响 SE 的身体变化以及通过社交网络提供情感支持来促进社交关系，是提高 QOL 的重要因素。这些发现可能为 HPN 患者的管理提供指导。
