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Autism. 2023 Apr;27(3):864-869. doi: 10.1177/13623613221133633. Epub 2022 Nov 7.
3
Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices.自闭症干预文献中与种族和民族有关的报告和参与者纳入模式:基于证据的实践的大规模系统评价数据。
Autism. 2022 Nov;26(8):2026-2040. doi: 10.1177/13623613211072593. Epub 2022 Jan 22.
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Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities.偏见、障碍及可能的解决方案:让自闭症研究人员更多地参与到不同种族、民族、社会经济背景社区的工作中。
J Autism Dev Disord. 2022 Sep;52(9):4206-4211. doi: 10.1007/s10803-021-05250-y. Epub 2021 Sep 16.
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Adm Policy Ment Health. 2021 Sep;48(5):857-883. doi: 10.1007/s10488-021-01133-7. Epub 2021 Apr 21.
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Research priorities of the autism community: A systematic review of key stakeholder perspectives.自闭症社群的研究重点:关键利益相关者观点的系统综述。
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文化适应检查表(CAC):干预措施和实践文化适应的质量指标。

The Cultural Adaptation Checklist (CAC): quality indicators for cultural adaptation of intervention and practice.

作者信息

Lee James D, Meadan Hedda, Sands Michelle M, Terol Adriana Kaori, Martin Melanie R, Yoon Christy D

机构信息

Department of Psychiatry and Behavioral Sciences, Seattle Children's Autism Center, University of Washington School of Medicine, Seattle, WA, USA.

Department of Special Education, University of Illinois at Urbana-Champaign, Champaign, IL, USA.

出版信息

Int J Dev Disabil. 2023 Feb 20;70(7):1285-1296. doi: 10.1080/20473869.2023.2176966. eCollection 2024.

DOI:10.1080/20473869.2023.2176966
PMID:39712453
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11660303/
Abstract

Cultural adaptation of evidence-based interventions for children with developmental disabilities, including autism, is an effective way to increase the effectiveness and sustainment of intervention effects. Such uptake of interventions is especially needed for communities of marginalized and minoritized populations. However, there have been very limited guidelines on how to ensure quality for cultural adaptation in autism research. With this gap in mind, we present the Cultural Adaptation Checklist, which was developed in an iterative process based on the principles of implementation science with the purposes to (a) guide research on the cultural adaptation of evidence-based intervention with diverse populations, and (b) systematically appraise the quality of cultural adaptation reported in intervention literature. In this article, we describe the Checklist, the development process, and how it may guide cultural adaptation in autism research.

摘要

对包括自闭症在内的发育障碍儿童的循证干预措施进行文化调适,是提高干预效果及维持干预成效的有效途径。对于边缘化和少数族裔群体社区而言,尤其需要采用此类干预措施。然而,关于如何确保自闭症研究中文化调适质量的指导方针非常有限。考虑到这一差距,我们提出了文化调适清单,该清单是在基于实施科学原则的迭代过程中制定的,目的是:(a) 指导针对不同人群的循证干预措施的文化调适研究;(b) 系统评估干预文献中报告的文化调适质量。在本文中,我们描述了该清单、开发过程以及它如何指导自闭症研究中的文化调适。