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单侧耳聋儿童的人工耳蜗植入:家长观点

Cochlear implantation for children with single-sided deafness: parents' perspectives.

作者信息

Hooper Abbey L, Teagle Holly F B

机构信息

Department of Audiology, The University of Auckland, Auckland, New Zealand.

The Hearing House, Auckland, New Zealand.

出版信息

J R Soc N Z. 2024 Oct 6;55(3):530-546. doi: 10.1080/03036758.2024.2403446. eCollection 2025.

DOI:10.1080/03036758.2024.2403446
PMID:39989655
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11841107/
Abstract

Historically, cochlear implantation is reserved for those with bilateral severe to profound hearing loss. However, indications have expanded to include Single-Sided Deafness (SSD) because of the known benefits of binaural hearing and the limitations of unilateral hearing, especially for children developing linguistic and cognitive skills. This study aimed to provide a qualitative perspective of lived experiences of children with SSD who use a cochlear implant (CI), as perceived and reported by their parents. An online questionnaire was developed and distributed to evaluate outcomes of cochlear implantation in children with SSD residing in New Zealand and the United States. Qualitative content analysis of open-ended questions identified themes, including: (1) motivating factors; (2) benefits of amplification; (3) challenges associated with the CI journey; and (4) advice to parents. Parents described benefits and challenges as a result of cochlear implantation, such as access to sound and academic and psychosocial development, as well as subjective improvements in spatial hearing, reduced listening fatigue, enhanced academic performance, and changes in quality of life. The difference that bilateral hearing makes to a child's development is difficult to precisely define but parental insights offer valuable perspective to healthcare providers when considering what some consider an elective procedure.

摘要

从历史上看,人工耳蜗植入术仅适用于双侧重度至极重度听力损失患者。然而,由于双耳听力的已知益处以及单侧听力的局限性,尤其是对正在发展语言和认知技能的儿童而言,其适应症已扩大到包括单侧耳聋(SSD)。本研究旨在从家长的认知和报告角度,对使用人工耳蜗(CI)的单侧耳聋儿童的生活经历提供定性观点。我们设计并分发了一份在线问卷,以评估居住在新西兰和美国的单侧耳聋儿童人工耳蜗植入的效果。对开放式问题的定性内容分析确定了以下主题:(1)激励因素;(2)放大的益处;(3)人工耳蜗植入过程中的挑战;以及(4)给家长的建议。家长们描述了人工耳蜗植入带来的益处和挑战,比如获得声音以及学业和心理社会发展,还有空间听力的主观改善;听力疲劳减轻;学业成绩提高;以及生活质量的变化。双侧听力对儿童发育的影响难以精确界定,但家长的见解为医疗服务提供者在考虑某些人认为是选择性手术时提供了有价值的观点。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e3f1/11841107/d9a1bc3eaf60/TNZR_A_2403446_F0003_OB.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e3f1/11841107/541045665d35/TNZR_A_2403446_F0002_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e3f1/11841107/d9a1bc3eaf60/TNZR_A_2403446_F0003_OB.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e3f1/11841107/541045665d35/TNZR_A_2403446_F0002_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e3f1/11841107/d9a1bc3eaf60/TNZR_A_2403446_F0003_OB.jpg

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本文引用的文献

1
Duration of cochlear implant use in children with prelingual single-sided deafness is a predictor of word perception in the CI ear.语前单侧聋儿童使用人工耳蜗的时间是预测其人工耳蜗侧词语感知能力的一个因素。
Hear Res. 2024 Sep 1;450:109076. doi: 10.1016/j.heares.2024.109076. Epub 2024 Jul 5.
2
Cochlear Implantation in Children Affected by Single-Sided Deafness: A Comprehensive Review.单侧耳聋儿童的人工耳蜗植入:一项综合综述。
Audiol Res. 2024 Jan 12;14(1):77-85. doi: 10.3390/audiolres14010007.
3
Functional connectivity changes in infants with varying degrees of unilateral hearing loss.
不同程度单侧听力损失婴儿的功能连接变化。
Cereb Cortex. 2023 Jul 5;33(14):9165-9174. doi: 10.1093/cercor/bhad192.
4
Two-Year Outcomes of Cochlear Implant Use for Children With Unilateral Hearing Loss: Benefits and Comparison to Children With Normal Hearing.单侧聋儿童使用人工耳蜗的两年随访结果:获益与正常听力儿童比较
Ear Hear. 2023;44(5):955-968. doi: 10.1097/AUD.0000000000001353. Epub 2023 Mar 7.
5
Effects of Age at Implantation on Outcomes of Cochlear Implantation in Children with Short Durations of Single-Sided Deafness.植入年龄对单侧聋持续时间短的儿童人工耳蜗植入效果的影响。
Otol Neurotol. 2023 Mar 1;44(3):233-240. doi: 10.1097/MAO.0000000000003811. Epub 2023 Jan 14.
6
American Cochlear Implant Alliance Task Force Guidelines for Clinical Assessment and Management of Cochlear Implantation in Children With Single-Sided Deafness.美国人工耳蜗植入联盟专家组关于单侧聋儿童人工耳蜗植入临床评估和管理的指南。
Ear Hear. 2022 Mar/Apr;43(2):255-267. doi: 10.1097/AUD.0000000000001204.
7
Discriminant Validity of the Parent-Proxy Preschool HEAR-QL.家长代理幼儿 HEAR-QL 量表的判别有效性。
Otol Neurotol. 2022 Feb 1;43(2):e212-e219. doi: 10.1097/MAO.0000000000003390.
8
Benefits of Cochlear Implantation in Childhood Unilateral Hearing Loss (CUHL Trial).儿童单侧听力损失(CUHL 试验)行人工耳蜗植入的益处。
Laryngoscope. 2022 Mar;132 Suppl 6(Suppl 6):S1-S18. doi: 10.1002/lary.29853. Epub 2021 Sep 20.
9
Qualitative Methods in Health Care Research.医疗保健研究中的定性方法
Int J Prev Med. 2021 Feb 24;12:20. doi: 10.4103/ijpvm.IJPVM_321_19. eCollection 2021.
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Head Shadow, Summation, and Squelch in Bilateral Cochlear-Implant Users With Linked Automatic Gain Controls.双侧人工耳蜗使用者中采用联动自动增益控制时的头部阴影、叠加和静噪
Trends Hear. 2021 Jan-Dec;25:23312165211018147. doi: 10.1177/23312165211018147.