Hermansen Østby Roar, Dahlin-Ivanoff Synneve, Hultqvist Sara, Edvardsson David, Lood Qarin
Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Centre for Ageing and Health-AgeCap, University of Gothenburg, Gothenburg, Sweden.
Centre for Person‑Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
PLoS One. 2025 Feb 28;20(2):e0319059. doi: 10.1371/journal.pone.0319059. eCollection 2025.
Earlier studies highlighted the significance of engaging in preferred activities to maintain health and well-being after moving into a residential aged care facility. However, there seem to be significant limitations in the range of activities available, often failing to meet frail older persons' preferences and needs This raises concerns about the adequacy of opportunities for persons living in residential age care facilities to engage in everyday activities and maintain a sense of purpose and well-being. This study aimed to identify and elucidate frail older persons' opportunities to influence their everyday life in residential aged care facilities. Thirteen frail older persons living in residential aged care facilities were involved by being asked to take photos of their everyday life over the course of one week. Photo-elicitation interviews were then conducted together with a researcher, to narrate the content and meaning of the photos in relation to opportunities to influence their everyday life. The interviews were analysed using reflexive thematic analysis. The analysis generated one overarching theme: Influence in everyday life is limited by institutional cultures, illustrating how the facilities functioned as institutions that ruled the older persons' everyday lives. This is further described in two interrelated core themes: 1) A game of power between older persons and staff with the sub-themes Feelings of inferiority and Infringement of integrity, and 2) The importance of dialogue, with the sub-themes The surrounding as a catalyst for the person's life-story and Becoming part of a community. Institutional cultures were described to affect everything that occurred in the residential aged care facilities, which meant that the older persons' preferences and needs were not always met. There is a need to further explore the opportunities for persons living in residential aged care facilities to participate in studies on how to attend to their wishes and needs.
早期研究强调了在搬进老年护理机构后参与偏好活动对于维持健康和幸福的重要性。然而,可用活动的范围似乎存在重大限制,往往无法满足体弱老年人的偏好和需求。这引发了人们对居住在老年护理机构中的人参与日常活动并保持目标感和幸福感的机会是否充足的担忧。本研究旨在识别并阐明体弱老年人在老年护理机构中影响其日常生活的机会。十三名居住在老年护理机构中的体弱老年人参与了研究,他们被要求在一周的时间里拍摄自己的日常生活照片。随后,研究人员与他们一起进行了照片引发式访谈,以讲述照片与影响他们日常生活机会相关的内容和意义。访谈采用反思性主题分析法进行分析。分析得出一个总体主题:日常生活中的影响力受机构文化限制,这说明了这些机构如何作为统治老年人日常生活的机构发挥作用。这在两个相互关联的核心主题中得到进一步描述:1)老年人与工作人员之间的权力博弈,子主题为自卑感和尊严受侵犯;2)对话的重要性,子主题为周围环境作为个人生活故事的催化剂以及融入社区。研究表明,机构文化影响着老年护理机构中发生的一切,这意味着老年人的偏好和需求并不总是能得到满足。有必要进一步探索居住在老年护理机构中的人参与关于如何关注他们的愿望和需求研究的机会。