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通过照片引发访谈揭示参与研究的潜在能力:对与居住在护理机构中的人们进行参与式研究的看法。

Uncovering hidden abilities for participation in research through photo-elicitation interviews: a view on participatory research with people living in residential care facilities.

作者信息

Lood Qarin, Hermansen Østby Roar, Hultqvist Sara, Edvardsson David, Dahlin-Ivanoff Synneve

机构信息

Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Centre for Ageing and Health -AgeCap, University of Gothenburg, Box 455, 40530, Gothenburg, Sweden.

School of Nursing and Midwifery, Faculty of Health Sciences, La Trobe University, GS Building, Office 327, Bundoora, 3083, Australia.

出版信息

Res Involv Engagem. 2023 Mar 18;9(1):9. doi: 10.1186/s40900-023-00422-9.

Abstract

BACKGROUND

Participatory research has been described to improve the relevance of research findings for the society in terms of quality of healthcare services and other public benefits. Nevertheless, there is limited guidance on how to conduct participatory research, and especially in relation to persons living in residential care facilities. To make the voices of this group heard, we therefore take a stance in the democratic approach to participatory research, and we have applied the theoretical framework Model of Human Occupation (MoHO) on participation to evaluate photo-elicitation interviews as a participatory research method with this group.

METHODS

A total of 13 persons living in two residential care facilities were involved in the study and asked to take photographs of their everyday life over one week. They were then invited to an individual interview to narrate the meaning of the photographs and to describe how they experienced the photo-elicitation method. The interviews were analysed in the six steps of theoretically driven reflexive thematic analysis.

RESULTS

The findings are described in the theme 'Uncovering hidden abilities for participation in research' that describes how photo elicitation interviews facilitated the older persons' participation in research. This is illustrated by four sub-themes: 'Bridging the ageing body', 'Altering habituation to everyday life', 'Empowering storytelling', and 'Negotiating the institutional culture'.

CONCLUSIONS

Our study findings support further application and evaluation of photo-elicitation interviews as a method for participatory research in residential care facilities. The major finding is how photo-elicitation interviews were used to reduce the impact of the institutional culture on the older persons' participation in research. The method is, however, not without limitations and we encourage researchers to study the dynamic relationship between physical, social, and cultural aspects of residential care facilities in relation to the use of photo-elicitation interviews with the persons living there.

摘要

背景

参与式研究已被描述为在医疗服务质量和其他公共利益方面提高研究结果对社会的相关性。然而,关于如何进行参与式研究的指导有限,尤其是涉及住在养老院的人群。为了让这一群体的声音被听到,我们因此在参与式研究的民主方法上表明立场,并应用了人类作业模式(MoHO)参与理论框架来评估照片引发访谈作为针对该群体的一种参与式研究方法。

方法

共有13名住在两家养老院的人参与了这项研究,并被要求在一周内拍摄他们日常生活的照片。然后他们被邀请参加个人访谈,讲述照片的意义,并描述他们对照片引发方法的体验。访谈采用理论驱动的反思性主题分析的六个步骤进行分析。

结果

研究结果在“揭示参与研究的隐藏能力”这一主题中进行了描述,该主题描述了照片引发访谈如何促进老年人参与研究。这通过四个子主题得以说明:“跨越衰老的身体”“改变对日常生活的习惯化”“赋予故事讲述权力”以及“协商机构文化”。

结论

我们的研究结果支持进一步应用和评估照片引发访谈作为养老院参与式研究的一种方法。主要发现是照片引发访谈如何被用于减少机构文化对老年人参与研究的影响。然而,该方法并非没有局限性,我们鼓励研究人员研究养老院的身体、社会和文化方面与对住在那里的人使用照片引发访谈之间的动态关系。

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Age-based exclusions in clinical trials: A review and new perspectives.临床试验中的基于年龄的排除:综述与新视角。
Contemp Clin Trials. 2022 Mar;114:106683. doi: 10.1016/j.cct.2022.106683. Epub 2022 Jan 18.

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