Serafica Reimund, Evangelista Lorraine S, Ward Tony, Peterson Jeffery, Guerrero Lopez Joseph, Lucero Julie, Erdei Esther, Braun Kathryn L, Bersamin Andrea, Thomas Jenifer, Wulfhorst J D, Jorcyk Cheryl, Palacios Rebecca, Owens-Manley Judith, Fore Elizabeth, Bertagnolli Ann, Bellon Chelsea, Sy Francisco S
School of Nursing and Mountain West CTR-IN, University of Nevada, Las Vegas, NV, USA.
Mountain West CTR-IN, University of Nevada, Las Vegas, NV, USA.
J Clin Transl Sci. 2025 Jan 22;9(1):e38. doi: 10.1017/cts.2025.7. eCollection 2025.
The Mountain West Clinical and Translational Infrastructure Network Community Engagement and Outreach (CEO) Core has fostered academic-community engagement since 2018. States historically receiving lower levels of NIH funding are characterized by significantly higher proportions of rural and remote populations, as well as uniquely elevated percentages of Native American/Alaska Native and Native Hawaiian/Pacific Islander populations compared to most other states. This case study highlights the Core's efforts in advancing community-engaged research. Key initiatives included forming a CEO Core Steering Committee to recruit interdisciplinary investigators, establishing regional community advisory boards to identify research priorities, and creating a Resource Library and Training Portal for stakeholders. The Core also collaborated with other Cores to provide training, mentorship, and funding for community-engaged research. Despite these achievements, geographical and cultural diversity presented engagement challenges. Regular meetings between investigators and stakeholders ensured bidirectional communication and aligned goals. The Core transformed transactional engagement into meaningful collaboration, emphasizing the need for interdisciplinary teams who understand community needs. Future goals include training academic teams, clinical providers, and community members, empowering early-stage investigators to share findings with partners, leveraging health records for research, and developing strategies to protect investigators' time.
自2018年以来,美国西部山区临床与转化基础设施网络社区参与和外展(CEO)核心一直在促进学术界与社区的参与。历史上获得美国国立卫生研究院(NIH)资金水平较低的州,其农村和偏远人口比例显著更高,与大多数其他州相比,美国原住民/阿拉斯加原住民以及夏威夷原住民/太平洋岛民的比例也特别高。本案例研究突出了该核心在推进社区参与研究方面所做的努力。关键举措包括成立CEO核心指导委员会以招募跨学科研究人员、设立区域社区咨询委员会以确定研究重点,以及为利益相关者创建资源库和培训门户。该核心还与其他核心合作,为社区参与研究提供培训、指导和资金。尽管取得了这些成就,但地理和文化多样性带来了参与方面的挑战。研究人员与利益相关者之间的定期会议确保了双向沟通并使目标保持一致。该核心将事务性参与转变为有意义的合作,强调需要跨学科团队了解社区需求。未来目标包括培训学术团队、临床提供者和社区成员,使早期研究人员有能力与合作伙伴分享研究结果,利用健康记录进行研究,以及制定保护研究人员时间的策略。