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撒哈拉以南非洲地区脑瘫患儿家庭照顾者的健康状况及支持需求的证据现状:一项范围综述

The state of evidence on the health outcomes and support needs of family caregivers of children with Cerebral Palsy in Sub-Saharan Africa: a scoping review.

作者信息

Melak Melkitu, Fakolade Afolasade, Mekonnen Solomon, Baraki Adhanom, Ross-White Amanda, Batorowicz Beata

机构信息

School of Rehabilitation Therapy, Queen's University, Kingston, Canada.

Institute of Public Health, College of Medicine and Health Sciences, University of Gondar, Ethiopia.

出版信息

Disabil Rehabil. 2025 Mar 7:1-16. doi: 10.1080/09638288.2025.2472984.

Abstract

PURPOSE

In Sub-Saharan Africa (SSA), caregivers of children with Cerebral Palsy (CP) face multidimensional challenges. However, there is a lack of comprehensive review of the available research on the health outcomes and support needs of family caregivers of children with CP.This scoping review aimed to identify the breadth and nature of research evidence on the health outcomes and support needs of family caregivers of children with CP in SSA.

MATERIALS AND METHODS

This scoping review was conducted following the JBI methodology. Original studies written in English were included. Medline, Embase, CINAHL, PsycINFO, Web of Science, Scopus, Global Health, Cochrane, East African Medical Journal, and Africa Online Journals were searched. Data was analyzed descriptively.

RESULTS

A total of 34 research articles were included, of which 64.7% ( = 22) were conducted in Ghana and 47% ( = 16) were qualitative studies. Caregivers had physical and psychological morbidities with financial, emotional, informational, and physical support needs.

CONCLUSION

Available research evidence indicated that caregiving contributed to negative health outcomes, with financial support being a pressing need. Future research should investigate the positive outcomes and inherent resources available to family caregivers of children with CP in SSA to inform the development of strength-based interventions.

摘要

目的

在撒哈拉以南非洲地区(SSA),脑瘫(CP)患儿的照料者面临多方面挑战。然而,目前缺乏对有关CP患儿家庭照料者健康结局及支持需求的现有研究的全面综述。本范围综述旨在确定SSA地区CP患儿家庭照料者健康结局及支持需求方面研究证据的广度和性质。

材料与方法

本范围综述按照JBI方法进行。纳入用英文撰写的原创性研究。检索了Medline、Embase、CINAHL、PsycINFO、科学引文索引、Scopus、全球健康、Cochrane、《东非医学杂志》和《非洲在线期刊》。对数据进行描述性分析。

结果

共纳入34篇研究文章,其中64.7%(n = 22)在加纳开展,47%(n = 16)为定性研究。照料者存在身体和心理疾病,有经济、情感、信息和身体方面的支持需求。

结论

现有研究证据表明,照料导致负面健康结局,经济支持是迫切需求。未来研究应调查SSA地区CP患儿家庭照料者可获得的积极结局和内在资源,为基于优势的干预措施的制定提供信息。

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