Warrillow Stephen, Gelbart Ben, Stevens Jess, Baikie Gordon, Howard Mark E
Department of Intensive Care, Austin Health, Heidelberg 3084, Victoria, Australia.
Department of Critical Care, The University of Melbourne, Parkville 3010, Victoria, Australia.
World J Crit Care Med. 2025 Mar 9;14(1):101835. doi: 10.5492/wjccm.v14.i1.101835.
Adolescence and the journey to adulthood involves exciting opportunities as well as psychosocial stress for young people growing up. These normal experiences are potentially magnified for teenagers living with chronic illness or disability and their families. Advances in care have improved survival for children with a variety of serious chronic medical conditions such that many who may once have died in childhood now survive well into adulthood with ongoing morbidity. For those with highly complex needs, care is often provided at major paediatric hospitals with expertise, specially trained personnel, and resources to support young people and their families for the first decades of life. At the end of adolescence, however, it is generally appropriate and necessary for young adults and their caregivers to transition to the care of clinicians trained in the care of adults at general hospitals. While there are some well-managed models to support this journey of transition, these are often specific to certain conditions and usually do not involve intensive care. Many patients may encounter considerable challenges during this period. Difficulties may include the loss of established therapeutic relationships, a perception of austerity and reduced amenity in facilities oriented to caring for adult patients, and care by clinicians with less experience with more common paediatric conditions. In addition, there is a risk of potential conflict between clinicians and families regarding goals of care in the event of a critical illness when it occurs in a young adult with major disability and long-term health issues. These challenges present genuine opportunities to better understand the transition from paediatric to adult-based care and to improve processes that assist clinicians who support patients and families as they shift between healthcare settings.
青春期及成年之旅,对成长中的年轻人来说,既充满了令人兴奋的机遇,也伴随着心理社会压力。对于患有慢性疾病或残疾的青少年及其家庭而言,这些正常经历可能会被放大。医疗护理的进步提高了患有各种严重慢性疾病儿童的存活率,以至于许多曾经可能在童年夭折的孩子现在能很好地活到成年,但仍有持续的发病率。对于那些有高度复杂需求的人,护理通常在大型儿科医院提供,那里有专业知识、经过专门培训的人员以及资源,在生命的最初几十年里支持年轻人及其家庭。然而,在青春期结束时,一般来说,年轻人及其照顾者向综合医院中接受过成人护理培训的临床医生过渡护理是合适且必要的。虽然有一些管理良好的模式来支持这一过渡过程,但这些模式往往特定于某些疾病,而且通常不涉及重症监护。许多患者在此期间可能会遇到相当大的挑战。困难可能包括失去已建立的治疗关系、对面向成年患者的设施的朴素感和舒适度下降的感知,以及由对更常见儿科疾病经验较少的临床医生提供护理。此外,当患有严重残疾和长期健康问题的年轻人发生危重病时,临床医生和家庭在护理目标方面可能存在潜在冲突。这些挑战为更好地理解从儿科护理向成人护理的过渡以及改进协助临床医生在患者和家庭在不同医疗环境之间转换时提供支持的流程提供了真正的机会。