Adult CF and Lung Transplant Unit, University Hospital la Fe, University of Valencia, Valencia, Spain.
UGC de Enfermedades Respiratorias, Hospital Regional Universitario / Universidad de Málaga, Instituto de Investigación Biomédica de Málaga, Spain.
J Cyst Fibros. 2018 Sep;17(5):672-679. doi: 10.1016/j.jcf.2017.10.015. Epub 2017 Nov 20.
The Cystic Fibrosis Questionnaire-Revised (CFQ-R+14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥14years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R+14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version.
Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15days later.
Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9.
The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.
囊性纤维化问卷修订版（CFQ-R+14）是一种针对囊性纤维化（CF）患者≥14 岁的特定疾病、与健康相关的生活质量工具。我们已经开发了 CFQ-R 的西班牙语电子版本（e-CFQ-R+14 西班牙）。我们的目的是比较纸质版和电子版，并验证电子版的有效性。
50 名 CF 患者完成了这项研究。所有患者在第 1 天同时回答纸质版和电子版问卷，并在 15 天后再次重复回答电子版 CFQ-R 问卷。
电子版本和纸质副本之间的一致性很高，所有领域的相关性均高于 0.9。e-CFQ-R 结果的重测信度很强，系数范围为 0.8 至 0.9。
e-CFQ-R 版本可靠且有效，可以替代纸质副本，从而简化生活质量评估。它还提供即时结果，不存在评分错误。它是 CF 护理中的一种有用的新工具。
