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神经肌肉疾病患者向更积极生活方式转变的行为改变的感知障碍和促进因素:一项定性研究

Perceived barriers to and facilitators of behavioural change towards a more active lifestyle in people with neuromuscular diseases: a qualitative study.

作者信息

Voorn Eric L, Oorschot Sander, Ritmeester Roos, De Zeeuw Lois, De Morée Sandra, Koopman Fieke S, Van Groenestijn Annerieke C, Jelsma Judith G M

机构信息

Amsterdam UMC location University of Amsterdam, Department of Rehabilitation Medicine, Amsterdam, The Netherlands; Amsterdam Movement Sciences, Rehabilitation & Development, Amsterdam, the Netherlands.

Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Public and Occupational health, Amsterdam, The Netherlands; Amsterdam Public Health Research Institute, Health Behaviors & Chronic Diseases, Amsterdam, the Netherlands.

出版信息

J Rehabil Med. 2025 Mar 19;57:jrm42577. doi: 10.2340/jrm.v57.42577.

Abstract

OBJECTIVE

To explore perceived barriers to and facilitators of behaviour change towards a more active lifestyle in people with neuromuscular diseases.

DESIGN

A qualitative study.

SUBJECTS

Nineteen subjects (63% females, age range 28-73 years), representing 4 different neuromuscular diseases.

METHODS

Data from a randomized controlled trial were used. Subjects followed a physical activity programme including coaching sessions using motivational interviewing techniques. All sessions were audio-recorded, and thematic analyses were conducted on a random selection of 29 audio recordings, using the International Classification of Functioning, Disability and Health as a framework.

RESULTS

Barriers and facilitators were identified in the following domains: body functions and structures (i.e., neuromusculoskeletal, sensory and mental functions), activities and participation (i.e., undertaking multiple tasks and complex interpersonal interactions), environmental factors (i.e., products and technology for personal use in daily living, design/construction of buildings for public and private use, financial assets, climate, natural events, support and relationships) and personal factors (i.e., satisfaction with life, attitude toward health and disease, attitude toward intervention, exercise habits and methodical skills).

CONCLUSION

Identified barriers and facilitators could guide healthcare professionals to facilitate the discussion of physical activity behaviour and to address them in a personalized way during neuromuscular rehabilitation treatment.

摘要

目的

探讨神经肌肉疾病患者在向更积极的生活方式转变行为方面所感知到的障碍和促进因素。

设计

一项定性研究。

研究对象

19名研究对象(63%为女性,年龄范围28 - 73岁),代表4种不同的神经肌肉疾病。

方法

使用来自一项随机对照试验的数据。研究对象遵循一项体育活动计划,包括采用动机性访谈技巧的指导课程。所有课程均进行了录音,并以《国际功能、残疾和健康分类》为框架,对随机选取的29份录音进行了主题分析。

结果

在以下领域确定了障碍和促进因素:身体功能和结构(即神经肌肉骨骼、感觉和心理功能)、活动和参与(即承担多项任务和复杂的人际互动)、环境因素(即日常生活中个人使用的产品和技术、公共和私人建筑的设计/建造、金融资产、气候、自然事件、支持和关系)以及个人因素(即生活满意度、对健康和疾病的态度、对干预的态度、运动习惯和方法技能)。

结论

确定的障碍和促进因素可指导医疗保健专业人员促进关于体育活动行为的讨论,并在神经肌肉康复治疗期间以个性化方式解决这些问题。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a2e1/11971938/94440eeb2533/JRM-57-42577-g001.jpg

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