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意大利一项针对唐氏综合征幼儿的新型家长介导执行功能干预措施的可接受性。

Acceptability of a Novel Parent-Mediated Executive Function Intervention for Young Children With Down Syndrome in Italy.

作者信息

Colaianni Sara, Walsh Madison M, Onnivello Sara, Pinks Miranda E, Marcolin Chiara, Van Deusen Kaylyn, Rossi Elisa, Riggs Nathaniel R, Pulina Francesca, Daunhauer Lisa, Fidler Deborah J, Lanfranchi Silvia

机构信息

Department of Developmental and Socialization Psychology, University of Padua, Padua, Italy.

Department of Human Development & Family Studies, Colorado State University, Fort Collins, Colorado, USA.

出版信息

J Appl Res Intellect Disabil. 2025 Mar;38(2):e70038. doi: 10.1111/jar.70038.

Abstract

BACKGROUND

People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive function Play Opportunities), a novel caregiver-mediated intervention designed to strengthen EF skills in young children with DS.

METHODS

Nineteen families of children aged 42-93 months participated. Caregivers completed questions via a smartphone app and provided feedback through Mid-Point and Exit questionnaires.

RESULTS

Implementation and enjoyment remained consistent throughout the intervention. Caregivers reported positive effects of EXPO on children's everyday life skills and found the coaching sessions beneficial for successful program implementation.

CONCLUSION

The EXPO intervention is acceptable and enjoyable for both caregivers and children, with caregivers reporting perceived improvements in children's everyday life skills after participating in the program.

摘要

背景

唐氏综合征(DS)患者易出现执行功能(EF)方面的挑战,而执行功能对适应性结果和学业成功至关重要。因此,针对执行功能的早期干预至关重要。本研究分析了意大利关于EXPO(执行功能游戏机会)的可接受性、趣味性和家庭实施情况的数据,EXPO是一种新型的由照顾者介导的干预措施,旨在增强唐氏综合征幼儿的执行功能技能。

方法

19个家庭参与了研究,其孩子年龄在42至93个月之间。照顾者通过智能手机应用程序完成问题,并通过中期和结束问卷提供反馈。

结果

在整个干预过程中,实施情况和趣味性保持一致。照顾者报告称EXPO对孩子的日常生活技能有积极影响,并发现辅导课程对项目的成功实施有益。

结论

EXPO干预对照顾者和孩子来说都是可接受且有趣的,照顾者报告称参与该项目后孩子的日常生活技能有明显改善。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/047a/11923395/47d2e3e01d77/JAR-38-e70038-g002.jpg

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