Agra Glenda, Gomes Rafael Kádla Jocelli, de Lima Monteiro Maria Heloyse, Freire Avelar Maria Aparecida, de Souza Neto Olavo Mauricio, Barbiere Santana Tatiana
Universidade Federal de Campina Grande - UFCG, campus Cuité -PB, Brasil. E-mail:
Universidade Federal de Campina Grande UFCG, campus Cuité -PB, Brasil. E-mail.
Rev Cuid. 2023 Dec 25;14(3):e02. doi: 10.15649/cuidarte.2876. eCollection 2023 Sep-Dec.
The professional death doula is considered a supportive collaborator, whose goal is to improve the quality of death in the process of terminality of patients, to provide a 'good death'.
The objective of the study is to map the scientific evidence on the roles of death doulas in the terminality of life.
This is a scoping review conducted in the databases CINHAL, EMBASE, WOS, PUBMED and LILACS using health descriptors connected by the Boolean operands AND and OR in the time frame between 2000 and 2021.
Of the 467 articles found, only 11 were part of the final sample. Among the diversity and flexibility of roles, professional doulas perform tasks, services and provide practical and non-clinical care throughout the dying, death, postmortem and bereavement process of patients and their families, as well as promote death education, considering the biopsychosocial and spiritual dimensions of human care. Possible barriers in the death doula movement include the inconsistency in existing training programs and the absence of a regulatory body for the supervision of practice and the standardization of fees.
The work of death doulas focuses on full presence and attention, sensitive, compassionate listening, and centering on the person in the process of terminality, respecting their wishes and honoring their biography.
Death doulas can augment existing end-of-life care services by providing holistic and personalized care services across health care settings, however, there is a need for more rigorous studies to explore health professionals' perceptions of this role and investigate clinical outcomes among dying people and their families.
专业的死亡陪伴者被视为一种支持性的协作者，其目标是在患者临终过程中提高死亡质量，实现“善终”。
本研究的目的是梳理关于死亡陪伴者在生命末期所扮演角色的科学证据。
这是一项范围综述，在CINHAL、EMBASE、WOS、PUBMED和LILACS数据库中进行，使用布尔运算符AND和OR连接的健康描述符，时间范围为2000年至2021年。
在检索到的467篇文章中，只有11篇纳入了最终样本。在角色的多样性和灵活性方面，专业死亡陪伴者在患者及其家属的临终、死亡、死后和丧亲过程中执行任务、提供服务并给予实际的非临床护理，同时考虑到人文关怀的生物心理社会和精神层面，促进死亡教育。死亡陪伴者运动中可能存在的障碍包括现有培训项目的不一致性，以及缺乏监管机构来监督实践和规范收费。
死亡陪伴者的工作重点在于全心投入和关注、敏感且富有同情心的倾听，并在临终过程中以患者为中心，尊重他们的意愿，珍视他们的人生经历。
死亡陪伴者可以通过在不同医疗环境中提供全面且个性化的护理服务来增强现有的临终关怀服务，然而，需要更严谨的研究来探索医疗专业人员对这一角色的看法，并调查临终患者及其家属的临床结局。
