Lahaije Siméon T A, Luijkx Jorien, Waninge Aly, van der Putten Annette A J
Faculty of Behavioural and Social Sciences, Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.
Faculty of Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Groningen, the Netherlands.
J Appl Res Intellect Disabil. 2025 Mar;38(2):e70039. doi: 10.1111/jar.70039.
Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life.
A product to support these families was developed using the method of Design Thinking, which included parents filling out three different questionnaires.
It was found that parents preferred to be supported in strengthening their resilience and care capacity, specifically by improving the communication and (mutual) understanding between them and municipal government employees. An online training course for government employees was subsequently developed.
This study has led to the development of a product that can support families with a child with profound intellectual and multiple disabilities according to their needs and preferences. This study has also provided insights into how these parents prefer to be supported.
家中有重度智力和多重残疾儿童的家庭必须应对孩子广泛的支持需求，这是一项复杂的任务。通过适当地支持他们，我们可以确保这些家庭过上积极且有意义的生活。
运用设计思维方法开发了一种支持这些家庭的产品，其中包括让家长填写三份不同的问卷。
发现家长们希望在增强自身恢复力和照料能力方面得到支持，特别是通过改善他们与市政府工作人员之间的沟通和（相互）理解来实现。随后为政府工作人员开发了一个在线培训课程。
本研究促成了一种能根据需求和偏好为家中有重度智力和多重残疾儿童的家庭提供支持的产品的开发。本研究还深入了解了这些家长希望获得何种支持。
