Telang Lahari A, Daud Hezreen Shaik, Rosita-Hanif Zariq, Nizam Betty, Cotter Aoife G, Rashid Abdul
RCSI-UCD Campus Malaysia (RUMC), Penang, Malaysia.
Centre for Experimental Host Pathogen Research (CEPHR), University College Dublin, Dublin, Ireland.
Res Involv Engagem. 2025 Mar 27;11(1):29. doi: 10.1186/s40900-025-00683-6.
Patient and public involvement and engagement (PPIE) in health care research has been advocated to ensure that the research is relevant, acceptable and beneficial to the communities that it serves. However, there remains a significant gap in research projects incorporating PPIE among the transgender communities, particularly from the global South. In this narrative summary the authors describe the methodology of PPIE through a novel collaboration with community members for the design and development of a bilingual and culturally sensitive educational intervention that was tailor made for transgender women in Malaysia. The educational intervention named Ms Radiance was aimed at creating oral health awareness, improving oral health care utilization and promoting safe oral sex practices among transgender women. The PPIE team included local transgender community advocates and artists who played a pivotal role in making the educational content accessible, engaging and suitable for delivery through a popular social media platform, Instagram. PPIE enhanced the intervention's relevance and effectiveness through community friendly, culturally appropriate content creation, delivery and trust-building. Instructional designs such as the ADDIE (analyse, design, develop, implement and evaluate) ensure that educational interventions are well-planned and effective. A structed PPIE approach in the research project was seamlessly integrated with the ADDIE instructional design that guided the effective planning and delivery of oral health and sexual health education The research highlights the impact of PPIE on the project and offers insights for future interventions in marginalized communities from the global South.
医疗保健研究中的患者及公众参与和介入(PPIE)已得到倡导,以确保研究对其所服务的社区具有相关性、可接受性和益处。然而,在跨性别群体中,尤其是来自全球南方的跨性别群体,纳入PPIE的研究项目仍存在显著差距。在本叙述性总结中,作者描述了通过与社区成员进行新颖合作开展PPIE的方法,该合作旨在为马来西亚的跨性别女性设计和开发一种双语且具有文化敏感性的教育干预措施。名为“光芒女士”的教育干预旨在提高跨性别女性的口腔健康意识、改善口腔保健利用情况并促进安全性行为。PPIE团队包括当地跨性别社区倡导者和艺术家,他们在使教育内容易于理解、引人入胜且适合通过热门社交媒体平台Instagram进行传播方面发挥了关键作用。PPIE通过创建社区友好、文化适宜的内容、传播及建立信任,增强了干预措施的相关性和有效性。诸如ADDIE(分析、设计、开发、实施和评估)等教学设计可确保教育干预措施规划完善且行之有效。研究项目中结构化的PPIE方法与ADDIE教学设计无缝整合,该教学设计指导了口腔健康和性健康教育的有效规划与实施。该研究突出了PPIE对项目的影响,并为未来针对全球南方边缘化社区的干预措施提供了见解。