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年轻女性1型糖尿病自我管理的改善:“引导式自我决定—青年”项目的经验:一项质性访谈研究

Improved self-management of type 1 diabetes in young women: Experiences of Guided Self-Determination-Young: A qualitative interview study.

作者信息

Haas Josephine, Persson Martina, Toft Eva Hagström, Bäck-Nirs Johanna, Lindström Marie, Lindholm Olinder Anna, Brorsson Anna Lena

机构信息

Department of Clinical Science and Education, Karolinska Institutet, Södersjukhuset, Stockholm, Sweden.

Sachsska Children and Youth Hospital, Södersjukhuset, Stockholm, Sweden.

出版信息

Diabet Med. 2025 Jun;42(6):e70029. doi: 10.1111/dme.70029. Epub 2025 Mar 28.

DOI:10.1111/dme.70029
PMID:40156141
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12080983/
Abstract

AIMS

Young women with type 1 diabetes (T1D) have higher risks of diabetes complications and report higher diabetes distress and lower quality of life than men with T1D. Their experiences of self-management and need for support have received little attention, and targeted interventions are lacking. The aim of this qualitative interview study was to explore the experiences of young women with T1D after participating in an intervention with the person-centred reflection and problem-solving model Guided Self-Determination-Young (GSD-Y), with a focus on self-management and support in daily diabetes care.

METHODS

A qualitative interview study was performed in a paediatric and an adult diabetes outpatient clinic in Sweden. After participating in an intervention with GSD-Y, 12 women (15-20 years) with T1D were selected and interviewed individually. The interviews were analysed using inductive qualitative content analysis.

RESULTS

The analysis revealed an overarching theme: 'A person-centred approach facilitated deeper reflection on both an individual and a relational level', and two main categories: 'The process initiated within the individual', and 'The process initiated together with the health care provider'. The women experienced increased knowledge of, and increased ability to manage diabetes. They also experienced a new type of relationship with the health care provider, including exchange of in-depth information beyond glucose levels, which appeared to increase their ability to receive support.

CONCLUSIONS

The GSD-Y model provided tools to explore and clarify the individual needs of young women with T1D, which supported diabetes self-management. Person-centred care was enabled when the women became engaged as active partners in diabetes health care.

摘要

目的

与1型糖尿病(T1D)男性患者相比,年轻女性T1D患者发生糖尿病并发症的风险更高,且糖尿病困扰程度更高,生活质量更低。她们的自我管理经历及支持需求很少受到关注,针对性干预措施也很缺乏。这项定性访谈研究的目的是探讨年轻女性T1D患者参与以个人为中心的反思与解决问题模式——青年自主导向(GSD-Y)干预后的经历,重点是日常糖尿病护理中的自我管理和支持。

方法

在瑞典的一家儿科和一家成人糖尿病门诊进行了一项定性访谈研究。12名年龄在15至20岁之间的T1D女性患者在参与GSD-Y干预后被挑选出来并进行单独访谈。采用归纳定性内容分析法对访谈进行分析。

结果

分析揭示了一个总体主题:“以个人为中心的方法促进了个体层面和关系层面的深入反思”,以及两个主要类别:“个体内部启动的过程”和“与医疗服务提供者共同启动的过程”。这些女性患者对糖尿病的认识有所增加,管理糖尿病的能力也有所提高。她们还体验到了与医疗服务提供者的新型关系,包括交流血糖水平以外的深入信息,这似乎增强了她们获得支持的能力。

结论

GSD-Y模式提供了工具来探索和明确年轻女性T1D患者的个体需求,这有助于糖尿病自我管理。当这些女性作为积极伙伴参与糖尿病医疗保健时,以个人为中心的护理得以实现。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3719/12080983/0c356108d2bc/DME-42-e70029-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3719/12080983/0c356108d2bc/DME-42-e70029-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3719/12080983/0c356108d2bc/DME-42-e70029-g001.jpg

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Young Adults with Type 1 Diabetes.青少年 1 型糖尿病患者。
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