市政福利领域在姑息治疗中的作用：探索荷兰地区姑息治疗网络协调员的观点。
The role of the municipal welfare domain in palliative care: exploring the views of coordinators of Dutch regional palliative care networks.
作者信息
Schutter Trudy, Koper Ian, Vissers Kris, Hasselaar Jeroen
机构信息
Department of Primary and Community Care, Radboud UMC, Postbus 9101, 6500 HB Nijmegen, The Netherlands.
Agora, Groeneweg 21a, Bunnik 3981 CK, The Netherlands.
出版信息
Palliat Care Soc Pract. 2025 Mar 31;19:26323524251326188. doi: 10.1177/26323524251326188. eCollection 2025.
BACKGROUND
Collaboration between the healthcare domain and welfare domain could benefit people confronted with an incurable disease residing at home and their informal caregivers, but little is known about this collaboration regarding palliative care. There are regional palliative care networks in the Netherlands, supporting interdisciplinary integrated palliative care; each network has a network coordinator who is a primary liaison for the network and who has an overview of palliative care services and activities in the region. However, the view of the networks on the role of the welfare domain and collaboration with the welfare domain in the field of palliative care is unknown.
OBJECTIVE
The aim of this study is to explore the awareness of professionals for the social dimension of palliative care and to explore how collaboration between the healthcare domain and the Dutch municipal welfare domain, in the field of palliative care, can be improved.
DESIGN
Focus group research.
METHODS
In 2022, six focus groups and two individual interviews were held with 30 coordinators of regional palliative care networks in the Netherlands.
RESULTS
This study showed that coordinators of regional palliative care networks consider collaboration with the welfare domain to be important. There are major differences between the regional palliative care networks regarding knowledge about and collaboration with the welfare domain. Coordinators themselves can function as catalysts for collaboration between palliative care and the welfare domain.
CONCLUSION
In the Netherlands, collaboration between the welfare domain and the healthcare domain in the field of palliative care is limited and differs considerably between regions. The Dutch municipal welfare domain is relevant for a large group of people confronted with an incurable disease, but it does not provide them with tailored services. Collaboration between palliative care and the municipal welfare domain has great potential, both on the patient level and on the level of the sustainability of palliative care, but it currently seems underexplored.
背景
医疗保健领域与福利领域之间的合作可能会使在家中患有不治之症的患者及其非正式护理人员受益，但对于这种在姑息治疗方面的合作却知之甚少。荷兰有区域姑息治疗网络，支持跨学科综合姑息治疗；每个网络都有一名网络协调员，他是该网络的主要联络人，负责统筹该地区的姑息治疗服务和活动。然而，这些网络对于福利领域在姑息治疗中的作用以及与福利领域合作的看法尚不清楚。
目的
本研究旨在探讨专业人员对姑息治疗社会层面的认识，并探讨如何改善医疗保健领域与荷兰市政福利领域在姑息治疗方面的合作。
设计
焦点小组研究。
方法
2022年，对荷兰30名区域姑息治疗网络协调员进行了6次焦点小组讨论和2次个人访谈。
结果
本研究表明，区域姑息治疗网络协调员认为与福利领域的合作很重要。各区域姑息治疗网络在与福利领域的知识和合作方面存在重大差异。协调员自身可以成为姑息治疗与福利领域合作的催化剂。
结论
在荷兰，福利领域与医疗保健领域在姑息治疗方面的合作有限，且各地区差异很大。荷兰市政福利领域与大量患有不治之症的人群相关，但并未为他们提供量身定制的服务。姑息治疗与市政福利领域的合作在患者层面和姑息治疗的可持续性层面都具有巨大潜力，但目前似乎尚未得到充分探索。
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