志愿者与专业人员在姑息治疗中的合作视角：志愿者、患者、家属照顾者和卫生保健专业人员的定性研究。
Perspectives on Volunteer-Professional Collaboration in Palliative Care: A Qualitative Study Among Volunteers, Patients, Family Carers, and Health Care Professionals.
机构信息
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB), Brussels, Belgium; End-of-Life Care Research Group, Ghent University, Ghent, Belgium; Department of Public Health and Primary Care Corneel Heymanslaan, Ghent University, Ghent, Belgium.
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB), Brussels, Belgium; End-of-Life Care Research Group, Ghent University, Ghent, Belgium.
出版信息
J Pain Symptom Manage. 2019 Aug;58(2):198-207.e7. doi: 10.1016/j.jpainsymman.2019.04.016. Epub 2019 Apr 25.
CONTEXT
Governments intend to meet resource constraints in professional palliative care by stimulating informal care, including volunteerism. However, little is known about current volunteer-professional collaboration. Such insights are relevant for future policy development regarding volunteer efficiency, quality of care, and the capacity of volunteer care to support health care services and professionals.
OBJECTIVES
To explore what constitutes volunteer-professional collaboration around palliative care.
METHODS
A qualitative study was conducted using semistructured focus groups with volunteers, nurses, psychologists, and family physicians and semistructured interviews with people with serious illnesses and with family carers. Participants were recruited from hospital, home-care, day-care, and live-in services in Flanders, Belgium. Interviews and focus groups were audio-recorded, transcribed verbatim, and analyzed by using a phenomenological approach. Two researchers coded independently in NVIVO 11 and reached a definitive coding scheme by comparing their resulting conceptual schemes.
RESULTS
Seventy-nine people participated in the study. Volunteers collaborate mostly with nurses, less with psychologists but not with physicians. Volunteer-professional collaboration entails mutual information-sharing regarding patient conditions and coordination of care provision, whereas nurses and psychologists provide emotional and functional support for volunteers. Lack of access to nurses, of leadership, and of patient-information-sharing guidelines were the most prominent barriers to collaboration.
CONCLUSION
Volunteers are at the front line of palliative care provision and therefore collaborate intensely with nurses, particularly in dedicated palliative care services. However, collaboration with other professionals is limited. The presence and availability of nurses was found to be crucial for volunteers, both for support and to achieve integration through collaboration.
背景
政府打算通过激励包括志愿服务在内的非正式护理来应对专业姑息治疗中的资源限制。然而，目前对于志愿人员与专业人员之间的合作情况了解甚少。这些观点对于未来有关志愿人员效率、护理质量以及志愿护理在支持医疗保健服务和专业人员方面的能力的政策制定具有重要意义。
目的
探讨姑息治疗中志愿人员与专业人员合作的内容。
方法
采用半结构式焦点小组（志愿者、护士、心理学家和家庭医生参加）和半结构式访谈（患有严重疾病的患者和家庭照顾者参加）对志愿者、护士、心理学家和家庭医生进行定性研究。参与者是从比利时佛兰德省的医院、家庭护理、日间护理和住家护理服务中招募的。访谈和焦点小组都进行了录音，并使用现象学方法进行了逐字转录和分析。两名研究人员在 NVIVO 11 中独立进行编码，并通过比较他们的概念方案来达成明确的编码方案。
结果
共有 79 人参与了这项研究。志愿者主要与护士合作，与心理学家合作较少，与医生则没有合作。志愿人员与专业人员之间的合作涉及有关患者状况的相互信息共享以及护理提供的协调，而护士和心理学家为志愿者提供情感和功能支持。缺乏与护士的联系、缺乏领导力以及缺乏患者信息共享指南是合作的最大障碍。
结论
志愿者处于姑息治疗服务的第一线，因此与护士密切合作，特别是在专门的姑息治疗服务中。但是，与其他专业人员的合作有限。研究发现，护士的存在和可用性对志愿者至关重要，这既有助于提供支持，也有助于通过合作实现整合。
Zotero 插件