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Uncovering the Life-long Impact of Skin Disease on Major Life Changing Decisions.

作者信息

Ali Faraz M, Finlay Andrew Y

机构信息

Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, United Kingdom.

出版信息

Acta Derm Venereol. 2025 Apr 1;105:adv43472. doi: 10.2340/actadv.v105.43472.

DOI:10.2340/actadv.v105.43472
PMID:40171704
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11977407/
Abstract
摘要

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本文引用的文献

1
Impact on Major Life-changing Decisions in Patients with Atopic Dermatitis.特应性皮炎患者重大生活决策的影响。
Acta Derm Venereol. 2025 Apr 1;105:adv42241. doi: 10.2340/actadv.v105.42241.
2
Life-Changing Decisions in Patients Suffering from Psoriasis: A Cross-Sectional Study.银屑病患者改变生活的决策：一项横断面研究。
Dermatol Ther (Heidelb). 2025 Apr;15(4):841-855. doi: 10.1007/s13555-025-01370-w. Epub 2025 Mar 6.
3
Factors Influencing Major Life-Changing Decisions in Patients with Psoriasis: A Cross-sectional Study.影响银屑病患者重大生活改变决策的因素：一项横断面研究。
Acta Derm Venereol. 2023 Oct 10;103:adv11640. doi: 10.2340/actadv.v103.11640.
4
Development of Measurement Tools to Assess Cumulative Life Course Impairment in Patients with Chronic Skin Diseases.用于评估慢性皮肤病患者累积生命历程损伤的测量工具的开发。
J Eur Acad Dermatol Venereol. 2023 Feb 18. doi: 10.1111/jdv.18977.
5
Impact of childhood atopic dermatitis on life decisions for caregivers and families.儿童特应性皮炎对照顾者和家庭生活决策的影响。
J Eur Acad Dermatol Venereol. 2022 Jun;36(6):e451-e454. doi: 10.1111/jdv.17943. Epub 2022 Jan 29.
6
The three dimensions of skin disease burden: 'now', 'long term' and 'family'.
Br J Dermatol. 2013 Nov;169(5):963-4. doi: 10.1111/bjd.12640.
7
Chronic disease influences over 40 major life-changing decisions (MLCDs): a qualitative study in dermatology and general medicine.慢性病影响40多项重大生活决策：皮肤病学与普通医学领域的定性研究
J Eur Acad Dermatol Venereol. 2014 Oct;28(10):1344-55. doi: 10.1111/jdv.12289. Epub 2013 Oct 18.
8
The development and validation of the Family Reported Outcome Measure (FROM-16)© to assess the impact of disease on the partner or family member.家庭报告结局测量量表（FROM-16）的制定与验证©旨在评估疾病对伴侣或家庭成员的影响。
Qual Life Res. 2014 Feb;23(1):317-26. doi: 10.1007/s11136-013-0457-y.
9
The development and validation of the major life changing decision profile (MLCDP).主要生活改变决策档案（MLCDP）的开发和验证。
Health Qual Life Outcomes. 2013 May 8;11:78. doi: 10.1186/1477-7525-11-78.
10
Chronic diseases influence major life changing decisions: a new domain in quality of life research.慢性病影响重大生活改变决策：生活质量研究的新领域。
J R Soc Med. 2011 Jun;104(6):241-50. doi: 10.1258/jrsm.2011.110010.