• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

重大生活改变决策档案:波兰语版本的创建。

Major life changing decision profile: Creation of the Polish language version.

机构信息

Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland.

Department of Nephrology and Transplantation Medicine, Wroclaw Medical University, Wroclaw, Poland.

出版信息

Dermatol Ther. 2021 Jan;34(1):e14568. doi: 10.1111/dth.14568. Epub 2020 Nov 29.

DOI:10.1111/dth.14568
PMID:33222372
Abstract

Chronic diseases have long-term consequences and can affect individuals' life course. The aim of this study was to create the Polish language version of a questionnaire estimating the impact of the disease on important life decisions-the major life changing decision profile (MLCDP). The translation of the MLCDP followed international guidelines. The created Polish language version of the questionnaire was administered to 32 nephrology and dermatology ward inpatients. To assess its properties, statistical analysis of the results obtained was conducted. The Polish language version of the MLCDP demonstrated very good internal consistency with a Cronbach α coefficient of 0.84. The questionnaire presented excellent test-retest reliability, established with a coefficient ICC of 0.97. The Polish language version of MLCDP has shown high internal consistency and reproducibility, and can be used effectively to assess the cumulative impact of the disease by indicating the number of major life decisions affected by chronic disease.

摘要

慢性病具有长期影响,可能会影响个人的人生轨迹。本研究旨在创建一种评估疾病对重要生活决策(重大生活改变决策概况,MLCDP)影响的问卷的波兰语版本。MLCDP 的翻译遵循国际准则。创建的问卷波兰语版本已在 32 名肾病学和皮肤科住院患者中进行了管理。为了评估其性质,对获得的结果进行了统计分析。MLCDP 的波兰语版本具有非常好的内部一致性,Cronbach α 系数为 0.84。该问卷具有出色的重测信度,ICC 系数为 0.97。MLCDP 的波兰语版本显示出较高的内部一致性和可重复性,可通过指出受慢性疾病影响的重大生活决策的数量,有效地用于评估疾病的累积影响。

相似文献

1
Major life changing decision profile: Creation of the Polish language version.重大生活改变决策档案:波兰语版本的创建。
Dermatol Ther. 2021 Jan;34(1):e14568. doi: 10.1111/dth.14568. Epub 2020 Nov 29.
2
Family Reported Outcome Measure - 16 (FROM-16): Creation, Reliability and Reproducibility of the Polish Language Version.家庭报告结局量表-16(FROM-16):波兰语版本的编制、信度和可重复性
Acta Derm Venereol. 2020 Jul 28;100(14):adv00219. doi: 10.2340/00015555-3583.
3
The development and validation of the major life changing decision profile (MLCDP).主要生活改变决策档案(MLCDP)的开发和验证。
Health Qual Life Outcomes. 2013 May 8;11:78. doi: 10.1186/1477-7525-11-78.
4
The Multiple Sclerosis Intimacy and Sexuality Questionnaire (MSISQ-15): translation, adaptation and validation of the Polish version for patients with multiple sclerosis and spinal cord injury.多发性硬化症亲密关系和性行为问卷 (MSISQ-15):多发性硬化症和脊髓损伤患者波兰语版本的翻译、改编和验证。
BMC Neurol. 2021 Mar 8;21(1):103. doi: 10.1186/s12883-021-02132-9.
5
Validation of the Polish Version of the Chronic Cough Quality of Life Questionnaire (Leicester Cough Questionnaire).验证波兰版慢性咳嗽生活质量问卷(莱斯特咳嗽问卷)。
Adv Clin Exp Med. 2016 Jul-Aug;25(4):649-53. doi: 10.17219/acem/59512.
6
Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version.化脓性汗腺炎生活质量量表(HiSQOL):波兰语版本的编制与验证
Postepy Dermatol Alergol. 2021 Dec;38(6):967-972. doi: 10.5114/ada.2020.97064. Epub 2020 Jul 14.
7
Translation, Cross-Cultural Adaptation, and Psychometric Properties of the Polish Version of the Hip Disability and Osteoarthritis Outcome Score (HOOS).波兰版髋关节残疾和骨关节炎结局评分(HOOS)的翻译、跨文化调适和心理计量特性。
Medicina (Kaunas). 2019 Sep 20;55(10):614. doi: 10.3390/medicina55100614.
8
Polish version of the COMQ-12 questionnaire, a new validated tool for the assessment of the quality of life in patients with chronic otitis media.COMQ-12 问卷的波兰语版本,这是一种新的经过验证的工具,用于评估慢性中耳炎患者的生活质量。
Otolaryngol Pol. 2024 Apr 9;78(2):44-49. doi: 10.5604/01.3001.0054.3355.
9
Validity and reliability of the Polish version of myasthenia gravis - Quality of life questionnaire - 15 item.波兰版重症肌无力生活质量问卷(15项)的效度与信度
Neurol Neurochir Pol. 2017 Jul-Aug;51(4):311-318. doi: 10.1016/j.pjnns.2017.05.003. Epub 2017 May 24.
10
Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version.化脓性汗腺炎生活质量量表24项(HSQoL - 24)现可供波兰患者使用:波兰语版本的创建与验证
Postepy Dermatol Alergol. 2022 Dec;39(6):1053-1058. doi: 10.5114/ada.2022.114885. Epub 2022 Mar 27.

引用本文的文献

1
Life-Changing Decisions in Patients Suffering from Psoriasis: A Cross-Sectional Study.银屑病患者改变生活的决策:一项横断面研究。
Dermatol Ther (Heidelb). 2025 Apr;15(4):841-855. doi: 10.1007/s13555-025-01370-w. Epub 2025 Mar 6.
2
Factors Influencing Major Life-Changing Decisions in Patients with Psoriasis: A Cross-sectional Study.影响银屑病患者重大生活改变决策的因素:一项横断面研究。
Acta Derm Venereol. 2023 Oct 10;103:adv11640. doi: 10.2340/actadv.v103.11640.