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癌症患者主要照顾者心理韧性与生活质量的关系:照顾负担的中介作用及社会支持的调节作用

The relationship between psychological resilience and quality of life among primary caregivers of cancer patients: the mediating role of care burden and the moderating role of social support.

作者信息

Ji Qiqi, Zhang Lin, Ji Pengjuan, Song Miaojing, Xu Jiashuang, Chen Yian, Ai Fangzhu, Dong Yiqun, Wang Chun, Guo Leilei

机构信息

School of Nursing, Liaoning Province, Jinzhou Medical University, No.40, Section 3, Songpo Road, Linghe District, Jinzhou City, 121000, People's Republic of China.

Department of Internal Medicine Nursing, School of Nursing, Wannan Medical College, 22 Wenchang West Road, Higher Education Park, Wuhu City, 232000, An Hui Province, People's Republic of China.

出版信息

Support Care Cancer. 2025 Apr 2;33(4):343. doi: 10.1007/s00520-025-09412-x.

Abstract

OBJECTIVE

The burden of care experienced by carers of cancer patients during the patient's lengthy medical treatment seriously affects their mental health and quality of life. Although social support may play a moderating role in this relationship, its specific role remains to be elucidated. This study aimed to investigate the mediating role of care burden in the relationship between psychological resilience and quality of life, as well as the moderating role of social support.

METHODS

329 primary caregivers of cancer patients were chosen for the study from a tertiary hospital in Jinzhou, Liaoning, China, using a convenience selection technique. Data were collected using the Psychological Resilience Scale (CD-RISC), Carer Burden Inventory (CBI), Quality of Life Scale (SF-12), and Social Support Scale (SSRS). Additionally, descriptive statistics were utilized to study the sample.

RESULTS

Significant correlations were found between psychological resilience, burden of care, social support, and quality of life of primary caregivers of cancer patients (P < 0.01). Mediation analyses showed that psychological resilience was a significant predictor of quality of life and that the effect of psychological resilience on quality of life was mediated to some extent by the caregiving burden.

CONCLUSIONS

Care burden mediates the relationship between psychological resilience and quality of life, and social support moderates the relationship between care burden and quality of life. A high level of social support can reduce the level of caregiver burden and enable caregivers to maintain a high level of living standards. Primary carers of cancer patients are physiologically and psychologically vulnerable during the long process of treatment and care of cancer patients, and their overall level of quality of life should also be taken seriously, with clinical practitioners paying timely attention to their overall health status and providing appropriate and timely interventions and tools.

摘要

目的

癌症患者漫长的治疗过程中,其照顾者所承受的护理负担会严重影响他们的心理健康和生活质量。尽管社会支持可能在这种关系中起调节作用,但其具体作用仍有待阐明。本研究旨在探讨护理负担在心理韧性与生活质量关系中的中介作用,以及社会支持的调节作用。

方法

采用便利抽样技术,从中国辽宁省锦州市一家三级医院选取329名癌症患者的主要照顾者作为研究对象。使用心理韧性量表(CD-RISC)、照顾者负担量表(CBI)、生活质量量表(SF-12)和社会支持量表(SSRS)收集数据。此外,运用描述性统计分析样本情况。

结果

癌症患者主要照顾者的心理韧性、护理负担、社会支持和生活质量之间存在显著相关性(P < 0.01)。中介分析表明,心理韧性是生活质量的显著预测因素,心理韧性对生活质量的影响在一定程度上通过护理负担起中介作用。

结论

护理负担在心理韧性与生活质量的关系中起中介作用,社会支持在护理负担与生活质量的关系中起调节作用。高水平的社会支持可以降低照顾者负担水平,使照顾者维持较高的生活水平。癌症患者的主要照顾者在癌症患者漫长的治疗和护理过程中生理和心理上较为脆弱,其整体生活质量水平也应受到重视,临床医生应及时关注他们的整体健康状况,并提供适当及时的干预措施和工具。

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