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谈谈你自己的看法:音频日记在探索重度精神疾病患者身体活动、久坐行为和睡眠行为方面的可用性和可接受性。

Speak for yourself: usability and acceptability of audio diaries to explore physical activity, sedentary and sleep behaviours of those living with severe mental illness.

作者信息

Pina Ilaria, Hodgson Philip, Anderson Kirstie, Oliver Emily J

机构信息

Newcastle University, Newcastle upon Tyne, UK.

Tees, Esk and Wear Valleys NHS Foundation Trust, Darlington, UK.

出版信息

J Act Sedentary Sleep Behav. 2024 Sep 11;3(1):21. doi: 10.1186/s44167-024-00058-4.

Abstract

BACKGROUND

People living with severe mental illness (SMI) face significant health inequalities, including reduced quality of life and life expectancy. Evidence has shown that people living with SMI are highly sedentary, face challenges when seeking to engage in physical activity (PA), and experience sleep difficulties. Motivation, mood and energy have been identified as critical determinants of these behaviours. PA and sleep are traditionally measured in isolation using quantitative approaches, limiting our understanding of the contexts and interactive ways in which these occur, especially for this population. Here, we adopted a flexible and holistic approach, using audio diaries to explore the usability and acceptability of capturing movement behaviours in people living with SMI.

METHODS

This study employed a qualitative design. Data were collected with 10 participants self-identifying as living with SMI, who completed 7-days of audio diaries, pre and post diary use interviews. Reflexive thematic analysis was used to analyse participants' movement behaviours and their experiences of using the audio diaries.

RESULTS

Audio diaries were perceived as acceptable to participants and their use for data capture was feasible, with participants experiencing their use as a flexible and empowering method of data capture. Within the exploratory data generated we identified four themes relating to participants' movement behaviours: finding themselves in a "vicious circle" with physical and mental issues impacting movement behaviours; a daily internal fight and dialogue concerning fear of feeling guilty and wasting time; a determination to "not let fatigue win" by pushing through the day; and the mixed effects of understanding the importance of movement behaviours yet finding it challenging to engage.

CONCLUSION

Audio diaries offered an easy to use and relatively inclusive means of exploring movement behaviours for people living with SMI, especially their context and interrelated nature. Our findings reinforced the well-established link between mental and physical health, and their influence on 24 h movement behaviours, identifying population-specific challenges derived from medication side effects, rigid engagement opportunities, and illness symptoms. Given this, co-production involving individuals with lived experience is crucial for developing tailored recommendations and support to promote sleep and movement among those living with SMI. We emphasized the need for holistic measurement approaches and opportunities that consider the interconnected impact of disrupted sleep and movement.

摘要

背景

重度精神疾病(SMI)患者面临显著的健康不平等问题,包括生活质量下降和预期寿命缩短。有证据表明,SMI患者久坐不动的时间很长,在寻求参与体育活动(PA)时面临挑战,并且存在睡眠困难。动机、情绪和精力已被确定为这些行为的关键决定因素。传统上,PA和睡眠是使用定量方法单独测量的,这限制了我们对这些行为发生的背景和相互作用方式的理解,尤其是对于这一人群。在此,我们采用了一种灵活且全面的方法,使用音频日记来探索在SMI患者中捕捉运动行为的可用性和可接受性。

方法

本研究采用定性设计。收集了10名自我认定为患有SMI的参与者的数据,他们完成了7天的音频日记以及日记使用前后的访谈。采用反思性主题分析来分析参与者的运动行为及其使用音频日记的体验。

结果

参与者认为音频日记是可接受的,并且使用它们来收集数据是可行的,参与者将其体验为一种灵活且赋权的数据收集方法。在生成的探索性数据中,我们确定了与参与者运动行为相关的四个主题:发现自己处于身心问题影响运动行为的“恶性循环”中;每天内心关于害怕感到内疚和浪费时间的斗争与对话;决心通过度过每一天来“不让疲劳获胜”;以及理解运动行为的重要性但发现参与其中具有挑战性的混合影响。

结论

音频日记为探索SMI患者的运动行为提供了一种易于使用且相对包容的方式,特别是其背景和相互关联的性质。我们的研究结果强化了心理健康与身体健康之间已确立的联系,以及它们对24小时运动行为的影响,确定了由药物副作用、僵化的参与机会和疾病症状导致的特定人群挑战。鉴于此,让有实际生活经验的个体参与共同生产对于制定量身定制的建议和支持措施以促进SMI患者的睡眠和运动至关重要。我们强调需要采用整体测量方法和机会,考虑睡眠和运动中断的相互关联影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8905/11960249/15b69b8fa5df/44167_2024_58_Fig1_HTML.jpg

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